Multicentre consensus recommendations for skin care in inherited epidermolysis bullosa

被引：0
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作者：
May El Hachem
Giovanna Zambruno
Eva Bourdon-Lanoy
Annalisa Ciasulli
Christiane Buisson
Smail Hadj-Rabia
Andrea Diociaiuti
Carolina F Gouveia
Angela Hernández-Martín
Raul de Lucas Laguna
Mateja Dolenc-Voljč
Gianluca Tadini
Guglielmo Salvatori
Cristiana De Ranieri
Stephanie Leclerc-Mercier
Christine Bodemer
机构：
[1] Bambino Gesù Children's Hospital,Dermatology Unit
[2] IRCCS,Laboratory of Molecular and Cell Biology
[3] Istituto Dermopatico dell’Immacolata,Department of Dermatology, Necker–Enfants Malades Hospital
[4] IDI-IRCCS,Dermatology University Clinic, Hospital de Santa Maria
[5] National reference centre for Genodermatoses (MAGEC),Department of Dermatology
[6] Université Paris Descartes - Sorbonne Paris Cité,Department of Dermatology
[7] Institut Imagine,Department of Dermatovenereology
[8] Centro Hospitalar Lisboa Norte EPE,Section of Dermatology
[9] Hospital Infantil del Niño Jesús,Neonatal Intensive Care Unit, Department of Medical and Surgical Neonatology
[10] Hospital Infantil La Paz,Clinical Psychology Unit
[11] University Medical Centre Ljubljana,undefined
[12] Fondazione IRCCS Cà Granda-Ospedale Maggiore Policlinico di Milano,undefined
[13] Bambino Gesù Children’s Hospital,undefined
[14] IRCCS,undefined
[15] Bambino Gesù Children’s Hospital,undefined
[16] IRCCS,undefined
来源：
Orphanet Journal of Rare Diseases | / 9卷
关键词：
Inherited epidermolysis bullosa; Multidisciplinary management recommendations; Skin care; Wound care; Itch; Pain; Therapeutic education; Disease burden; Quality of life; Continuity of care;
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