Parent–child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish–German cross-sectional study

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作者
Stefanie Witt
Michaela Dellenmark-Blom
Susanne Kuckuck
Jens Dingemann
Kate Abrahamsson
Carmen Dingemann
John Eric Chaplin
Benno Ure
Monika Bullinger
Vladimir Gatzinsky
Linus Jönsson
Julia Hannah Quitmann
机构
[1] University Medical Center Hamburg-Eppendorf,Department of Medical Psychology
[2] Sahlgrenska University Hospital,Department of Pediatric Surgery, Queen Silvia Children’s Hospital
[3] Hannover Medical School and Auf der Bult Children’s Hospital,Department of Pediatric Surgery
[4] Gothenburg University,Institute of Clinical Sciences, Department of Pediatrics
[5] The Queen Silvia Children’s Hospital,undefined
关键词
Esophageal atresia; Congenital malformation; Rare disease; Health-related quality of life; Parent–child agreement;
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