Parent–child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish–German cross-sectional study

被引：0
|
作者：
Stefanie Witt
Michaela Dellenmark-Blom
Susanne Kuckuck
Jens Dingemann
Kate Abrahamsson
Carmen Dingemann
John Eric Chaplin
Benno Ure
Monika Bullinger
Vladimir Gatzinsky
Linus Jönsson
Julia Hannah Quitmann
机构：
[1] University Medical Center Hamburg-Eppendorf,Department of Medical Psychology
[2] Sahlgrenska University Hospital,Department of Pediatric Surgery, Queen Silvia Children’s Hospital
[3] Hannover Medical School and Auf der Bult Children’s Hospital,Department of Pediatric Surgery
[4] Gothenburg University,Institute of Clinical Sciences, Department of Pediatrics
[5] The Queen Silvia Children’s Hospital,undefined
来源：
Orphanet Journal of Rare Diseases | / 16卷
关键词：
Esophageal atresia; Congenital malformation; Rare disease; Health-related quality of life; Parent–child agreement;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [1] Parent-child-agreement on health-related quality of life and its determinants in patients born with Esophageal Atresia: a Swedish-German cross-sectional study
    Witt, Stefanie
    Dellenmark-Blom, Michaela
    Kuckuck, Susanne
    Dingemann, Jens
    Abrahamsson, Kate
    Dingemann, Carmen
    Chaplin, John Eric
    Ure, Benno
    Bullinger, Monika
    Gatzinsky, Vladimir
    Joensson, Linus
    Quitmann, Julia Hannah
    ORPHANET JOURNAL OF RARE DISEASES, 2021, 16 (01)
  • [2] Agreement between mothers', fathers', and children's' ratings on health-related quality of life in children born with esophageal atresia - a German cross-sectional study
    Witt, Stefanie
    Bloemeke, Janika
    Bullinger, Monika
    Dingemann, Jens
    Dellenmark-Blom, Michaela
    Quitmann, Julia
    BMC PEDIATRICS, 2019, 19 (01)
  • [3] Agreement between mothers’, fathers’, and children’s’ ratings on health-related quality of life in children born with esophageal atresia – a German cross-sectional study
    Stefanie Witt
    Janika Bloemeke
    Monika Bullinger
    Jens Dingemann
    Michaela Dellenmark-Blom
    Julia Quitmann
    BMC Pediatrics, 19
  • [4] HEALTH-RELATED QUALITY OF LIFE AND ITS DETERMINANTS IN CHILDREN AND ADOLESCENTS BORN WITH ESOPHAGEAL ATRESIA
    Peetsold, M.
    Heij, H.
    Deurloo, J.
    Gemke, R.
    ACTA PAEDIATRICA, 2009, 98 : 206 - 207
  • [5] Generic Health-Related Quality of Life after Repair of Esophageal Atresia and Its Determinants within a German-Swedish Cohort
    Flieder, Sofie
    Dellenmark-Blom, Michaela
    Witt, Stefanie
    Dingemann, Carmen
    Quitmann, Julia H.
    Jonsson, Linus
    Gatzinsky, Vladimir
    Chaplin, John E.
    Dammeier, Barbara Gomez
    Bullinger, Monika
    Ure, Benno M.
    Abrahamsson, Kate
    Dingemann, Jens
    EUROPEAN JOURNAL OF PEDIATRIC SURGERY, 2019, 29 (01) : 75 - 84
  • [6] Health-related quality of life experiences in children and adolescents born with esophageal atresia: A Swedish-German focus group study
    Witt, Stefanie
    Dellenmark-Blom, Michaela
    Flieder, Sofie
    Dingemann, Jens
    Abrahamsson, Kate
    Jonsson, Linus
    Gatzinsky, Vladimir
    Chaplin, John Eric
    Ure, Benno
    Dingemann, Carmen
    Bullinger, Monika
    Sommer, Rachel
    Quitmann, Julia Hannah
    CHILD CARE HEALTH AND DEVELOPMENT, 2019, 45 (01) : 79 - 88
  • [7] Health-related quality of life in children after surgical repair of esophageal atresia: a cross-sectional study in China
    Feng, Zhong
    Zhu, Haitao
    He, Weijing
    Peng, Xueni
    Gao, Runnan
    Tian, Yuxin
    Cao, Xuqing
    Chen, Gong
    Dong, Kuiran
    Zheng, Shan
    Shen, Chun
    FRONTIERS IN PEDIATRICS, 2024, 11
  • [8] Factors influencing health-related quality of life in parents of children born with esophageal atresia in a Swedish-German cohort
    Dellenmark-Blom, Michaela
    Abrahamsson, Kate
    Dingemann, Jens
    Witt, Stefanie
    Dingemann, Carmen
    Jonsson, Linus
    Gatzinsky, Vladimir
    Bullinger, Monika
    Ure, Benno
    Chaplin, John E.
    Quitmann, Julia H.
    QUALITY OF LIFE RESEARCH, 2021, 30 (SUPPL 1) : S168 - S169
  • [9] Health-related quality of life and its determinants in children and adolescents born with oesophageal atresia
    Peetsold, M. G.
    Heij, H. A.
    Deurloo, J. A.
    Gemke, R. J. B. J.
    ACTA PAEDIATRICA, 2010, 99 (03) : 411 - 417
  • [10] Health-related quality of life in patients with lymphoedema - a cross-sectional study
    Klernas, Pia
    Johnsson, Aina
    Horstmann, Vibeke
    Johansson, Karin
    SCANDINAVIAN JOURNAL OF CARING SCIENCES, 2018, 32 (02) : 634 - 644
12345