Early Detection, Diagnosis and Intervention Services for Young Children with Autism Spectrum Disorder in the European Union (ASDEU): Family and Professional Perspectives

被引：0

作者：

Álvaro Bejarano-Martín

Ricardo Canal-Bedia

María Magán-Maganto

Clara Fernández-Álvarez

María Victoria Cilleros-Martín

María Cruz Sánchez-Gómez

Patricia García-Primo

Mary Rose-Sweeney

Andrew Boilson

Renata Linertová

Herbert Roeyers

Sara Van der Paelt

Diana Schendel

Christine Warberg

Susanne Cramer

Antonio Narzisi

Filippo Muratori

María Luisa Scattoni

Irma Moilanen

Anneli Yliherva

Evald Saemundsen

Sigríður Loa Jónsdóttir

Magdalena Efrim-Budisteanu

Aurora Arghir

Sorina Mihaela Papuc

Astrid Vicente

Celia Rasga

Bernadette Rogé

Quentin Guillon

Sophie Baduel

Johanna Xenia Kafka

Luise Poustka

Oswald D. Kothgassner

Rafal Kawa

Ewa Pisula

Tracey Sellers

Manuel Posada de la Paz

机构：

[1] Universidad de Salamanca,Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación, Universidad de Salamanca, Centro de Atención Integral al Autismo (INFOAUTISMO), Facultad de Educación

[2] Johannes Kepler University,Research Institute for Developmental Medicine

[3] Dublin City University,School of Nursing and Human Sciences

[4] Canary Island Foundation for Health Research (Fundación Canaria de Investigación Sanitaria/FUNCANIS) and Health Service Research Network for Chronic Diseases (Red de Investigación en Servicios de Salud en Enfermedades Crónicas/REDISSEC),Department of Exper

[5] Ghent University,Department of Economics and Business, National Centre for Register

[6] iPSYCH,Based Research

[7] The Lundbeck Foundation Initiative for Integrative Psychiatric Research,Department of Public Health

[8] Aarhus University,Department of Clinical and Experimental Medicine

[9] Aarhus University,Research Co

[10] University of Pisa,ordination and Support Service

[11] IRCCS Stella Maris Foundation,Child Language Research Center, Logopedics, Faculty of Humanities

[12] Istituto Superiore di Sanità Viale Regina Elena 299,Department of Child and Adolescent Psychiatry

[13] University of Oulu,Department of Child and Adolescent Psychiatry and Psychotherapy

[14] Oulu University Hospital,Faculty of Psychology

[15] University of Oulu,undefined

[16] State Diagnostic and Counselling Centre,undefined

[17] Victor Babes - National Institute of Pathology,undefined

[18] Instituto Nacional de Saúde Doutor Ricardo Jorge,undefined

[19] CERPPS,undefined

[20] Université Toulouse Jean-Jaurès,undefined

[21] Medical University of Vienna,undefined

[22] University Medical Centre Göttingen,undefined

[23] University of Warsaw,undefined

[24] National Autistic Society (NAS),undefined

[25] Institute of Rare Diseases Research (Instituto de Investigación de Enfermedades Raras/IIER),undefined

[26] & Consortium for Biomedical Research in Rare Diseases (Centro de Investigación Biomédica en Red de Enfermedades Raras/CIBERER),undefined

[27] Carlos III Institute of Health (Instituto de Salud Carlos III),undefined

来源：

Journal of Autism and Developmental Disorders | 2020年 / 50卷

关键词：

Autism spectrum disorder; Early detection; Diagnosis; Patient satisfaction; Mental health services; Survey;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

Early services for ASD need to canvas the opinions of both parents and professionals. These opinions are seldom compared in the same research study. This study aims to ascertain the views of families and professionals on early detection, diagnosis and intervention services for young children with ASD. An online survey compiled and analysed data from 2032 respondents across 14 European countries (60.9% were parents; 39.1% professionals). Using an ordinal scale from 1 to 7, parents’ opinions were more negative (mean = 4.6; SD 2.2) compared to those of professionals (mean = 4.9; SD 1.5) when reporting satisfaction with services. The results suggest services should take into account child’s age, delays in accessing services, and active stakeholders’ participation when looking to improve services.

引用

页码：3380 / 3394

页数：14

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