What do patients with unmet medical needs want? A qualitative study of patients’ views and experiences with expanded access to unapproved, investigational treatments in the Netherlands

被引：0
|
作者：
Eline M. Bunnik
Nikkie Aarts
机构：
[1] Erasmus MC,Department of Medical Ethics and Philosophy of Medicine
[2] University Medical Centre Rotterdam,undefined
来源：
BMC Medical Ethics | / 20卷
关键词：
Compassionate use; Expanded access; Investigational drugs; Patients’ attitudes; Ethical issues; Qualitative study; Interviews; Focus groups;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 47 条
  • [41] To what degree do patients with advanced lung cancer want to be informed and involved in medical decision-making? A multicentre study in 13 hospitals in Belgium
    Pardon, Koen
    Van Meerbeeck, Jan
    Schallier, Denis
    Germonpre, Paul
    Galdermans, Danny
    Van Kerckhoven, Willem
    Bernheim, Jan
    Deschepper, Reginald
    Mortier, Freddy
    Vander Stichele, Robert
    Deliens, Luc
    JOURNAL OF THORACIC ONCOLOGY, 2009, 4 (09) : S541 - S542
  • [42] Shared medical appointments in English primary care for long-term conditions: a qualitative study of the views and experiences of patients, primary care staff and other stakeholders
    Fiona Graham
    Helen Martin
    Jan Lecouturier
    Amy O’Donnell
    Mei Yee Tang
    Katherine Jackson
    Falko F. Sniehotta
    Eileen Kaner
    BMC Primary Care, 23
  • [43] Shared medical appointments in English primary care for long-term conditions: a qualitative study of the views and experiences of patients, primary care staff and other stakeholders
    Graham, Fiona
    Martin, Helen
    Lecouturier, Jan
    O'Donnell, Amy
    Tang, Mei Yee
    Jackson, Katherine
    Sniehotta, Falko
    Kaner, Eileen
    BMC PRIMARY CARE, 2022, 23 (01):
  • [44] What do spouse primary caregivers of patients with glioblastoma want medical providers to know? A qualitative thematic reflexive analysis of letters written by primary caregivers from a secret Facebook support group
    Coman, Diana L.
    Chard, Megan P.
    Desautels, Lisa
    Lutz, Barbara J.
    Minns, Laurie A.
    BMJ OPEN, 2024, 14 (03):
  • [45] What follow-up care and self-management support do patients with type 2 diabetes want after their first acute coronary event? A qualitative study
    Kasteleyn, Manse J.
    Gorter, Kees J.
    van Puffelen, Anne L.
    Heijmans, Monique
    Vos, Rimke C.
    Jansen, Hanneke
    Rutten, Guy E. H. M.
    PRIMARY CARE DIABETES, 2014, 8 (03) : 195 - 206
  • [46] What do you want me to know about you? A qualitative retrospective pilot study to pay more attention to patients' personal life aspects upon admission to a palliative care ward
    Kitta, A.
    Adamidis, F.
    Unseld, M.
    Watzke, H.
    Masel, E.
    ANNALS OF ONCOLOGY, 2019, 30
  • [47] "Doing What Only I Can Do" Experiences From Participating in a Multimodal Exercise-Based Intervention in Older Patients With Advanced Cancer-A Qualitative Explorative Study
    Mikkelsen, Marta Kramer
    Michelsen, Hanne
    Nielsen, Dorte Lisbet
    Vinther, Anders
    Lund, Cecilia Margareta
    Jarden, Mary
    CANCER NURSING, 2022, 45 (02) : E514 - E523
12345