Burden of albinism: development and validation of a burden assessment tool

被引：0
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作者：
Fanny Morice-Picard
Charles Taïeb
Aurelie Marti
Antoine Gliksohn
Mohammed Bennani
Christine Bodemer
Khaled Ezzedine
机构：
[1] CHU Bordeaux,
[2] FIMARAD,undefined
[3] Hôpital Necker-Enfants Malades,undefined
[4] APHP,undefined
[5] Genespoir,undefined
[6] Qualees,undefined
[7] MAGEC,undefined
[8] CHU Necker-Enfants Malades,undefined
[9] APHP,undefined
[10] Annimatrice,undefined
[11] FIMARAD,undefined
[12] Hôpital Necker-Enfants Malades,undefined
[13] APHP,undefined
[14] EA EpiDermE,undefined
[15] UPE-Université Paris-Est,undefined
[16] CHU H Mondor,undefined
[17] APHP,undefined
来源：
Orphanet Journal of Rare Diseases | / 13卷
关键词：
Burden; Albinism; Real life; Quality of life;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
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