Burden of albinism: development and validation of a burden assessment tool

被引：0

作者：

Fanny Morice-Picard

Charles Taïeb

Aurelie Marti

Antoine Gliksohn

Mohammed Bennani

Christine Bodemer

Khaled Ezzedine

机构：

[1] CHU Bordeaux,

[2] FIMARAD,undefined

[3] Hôpital Necker-Enfants Malades,undefined

[4] APHP,undefined

[5] Genespoir,undefined

[6] Qualees,undefined

[7] MAGEC,undefined

[8] CHU Necker-Enfants Malades,undefined

[9] APHP,undefined

[10] Annimatrice,undefined

[11] FIMARAD,undefined

[12] Hôpital Necker-Enfants Malades,undefined

[13] APHP,undefined

[14] EA EpiDermE,undefined

[15] UPE-Université Paris-Est,undefined

[16] CHU H Mondor,undefined

[17] APHP,undefined

来源：

Orphanet Journal of Rare Diseases | / 13卷

关键词：

Burden; Albinism; Real life; Quality of life;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

共 50 条

[1] Burden of albinism: development and validation of a burden assessment tool
Morice-Picard, Fanny
Taieb, Charles
Marti, Aurelie
Gliksohn, Antoine
Bennani, Mohammed
Bodemer, Christine
Ezzedine, Khaled
[J]. ORPHANET JOURNAL OF RARE DISEASES, 2018, 13
[2] Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool
Armand, Marie-Laure
Taieb, Charles
Bourgeois, Aline
Bourlier, Mireille
Bennani, Mohammed
Bodemer, Christine
Wolkenstein, Pierre
[J]. ORPHANET JOURNAL OF RARE DISEASES, 2019, 14 (1)
[3] Burden of adult neurofibromatosis 1: development and validation of a burden assessment tool
Marie-Laure Armand
Charles Taieb
Aline Bourgeois
Mireille Bourlier
Mohammed Bennani
Christine Bodemer
Pierre Wolkenstein
[J]. Orphanet Journal of Rare Diseases, 14
[4] Development and content validation of the Assessment of Burden of ColoRectal Cancer (ABCRC)-tool
te Boome, Iris
Somers, Anne M. J.
Graupner, Caitlin
Kimman, Merel L.
Gidding-Slok, Annerika H. M.
Breukink, Stephanie O.
[J]. EJSO, 2022, 48 (08): : 1807 - 1814
[5] The burden of osteoarthritis: development and validation of a new assessment tool (BONe'S)
Rannou, Francois
Bertin, Philippe
Grange, Laurent
Branchoux, Sebastien
Dachicourt, Jean-Noel
Taieb, Charles
[J]. CURRENT MEDICAL RESEARCH AND OPINION, 2014, 30 (04) : 741 - 751
[6] Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD
Annerika H M Slok
Johannes C C M in ’t Veen
Niels H Chavannes
Thys van der Molen
Maureen P M H Rutten-van Mölken
Huib A M Kerstjens
Philippe L Salomé
Sebastiaan Holverda
PN Richard Dekhuijzen
Denise Schuiten
Guus M Asijee
Onno C P van Schayck
[J]. npj Primary Care Respiratory Medicine, 24
[7] Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD
Slok, Annerika H. M.
in 't Veen, Johannes C. C. M.
Chavannes, Niels H.
van der Molen, Thys
Rutten-van Molken, Maureen P. M. H.
Kerstjens, Huib A. B.
Salome, Philippe L.
Holverda, Sebastiaan
Dekhuijzen, P. N. Richard
Schuiten, Denise
Asijee, Guus M.
van Schayck, Onno C. P.
[J]. NPJ PRIMARY CARE RESPIRATORY MEDICINE, 2014, 24
[8] Atopic Dermatitis Burden Scale for Adults: Development and Validation of a New Assessment Tool
Taieb, Alain
Boralevi, Franck
Seneschal, Julien
Merhand, Stephanie
Georgescu, Victor
Taieb, Charles
Ezzedine, Khaled
[J]. ACTA DERMATO-VENEREOLOGICA, 2015, 95 (06) : 700 - 705
[9] Development and initial validation of a family caregiver burden screening and assessment instrument (burden)
Chang, C
Emanuel, L
[J]. GERONTOLOGIST, 2003, 43 : 48 - 48
[10] The Vitiligo Impact Patient Scale (VIPs): Development and Validation of a Vitiligo Burden Assessment Tool
Salzes, Camille
Abadie, Sophie
Seneschal, Julien
Whitton, Maxine
Meurant, Jean-Marie
Jouary, Thomas
Ballanger, Fabienne
Boralevi, Franck
Taieb, Alain
Taieb, Charles
Ezzedine, Khaled
[J]. JOURNAL OF INVESTIGATIVE DERMATOLOGY, 2016, 136 (01) : 52 - 58

← 1 2 3 4 5 →