The TREAT-NMD care and trial site registry: an online registry to facilitate clinical research for neuromuscular diseases

被引：0
|
作者：
Sunil Rodger
Hanns Lochmüller
Adrian Tassoni
Kathrin Gramsch
Kirsten König
Kate Bushby
Volker Straub
Rudolf Korinthenberg
Janbernd Kirschner
机构：
[1] Newcastle University,Institute of Genetic Medicine
[2] International Centre for Life,Clinical Trials Unit
[3] University Medical Center Freiburg,Department of Neuropaediatrics and Muscle Disorders
[4] University Medical Center Freiburg,undefined
来源：
Orphanet Journal of Rare Diseases | / 8卷
关键词：
Rare diseases; Registries; Clinical trials; Trial sites; Care sites; Centres of expertise; CTSR; Reference networks; ERN; CARE-NMD;
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