Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public

被引：0
|
作者：
Vanessa Warren
Christine Critchley
Rebekah McWhirter
Jarrod Walshe
Dianne Nicol
机构：
[1] University of Tasmania,School of Law
[2] Swinburne University of Technology,School of Health Science
[3] Deakin University,School of Medicine
来源：
BMC Medical Genomics | / 15卷
关键词：
Genomic data sharing; Benefit sharing; Future use; Commercialization; Public attitudes; Governance; Genetic data;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [1] Context matters in genomic data sharing: a qualitative investigation into responses from the Australian public
    Warren, Vanessa
    Critchley, Christine
    McWhirter, Rebekah
    Walshe, Jarrod
    Nicol, Dianne
    [J]. BMC MEDICAL GENOMICS, 2023, 15 (SUPPL 3)
  • [2] Context matters: enablers and barriers to knowledge sharing in Australian public sector ICT projects
    Karagoz, Yakub
    Whiteside, Naomi
    Korthaus, Axel
    [J]. JOURNAL OF KNOWLEDGE MANAGEMENT, 2020, 24 (08) : 1921 - 1941
  • [3] Australian Attitudes Towards Waivers of Consent Within the Context of Genomic Data Sharing
    Newett, Lyndsay
    McWhirter, Rebekah
    Eckstein, Lisa
    Warren, Vanessa
    Nicol, Dianne
    [J]. JOURNAL OF EMPIRICAL RESEARCH ON HUMAN RESEARCH ETHICS, 2024, 19 (03) : 113 - 123
  • [4] Australian public perspectives on genomic data storage and sharing: Benefits, concerns and access preferences
    Lynch, Fiona
    Meng, Yan
    Best, Stephanie
    Goranitis, Ilias
    Savulescu, Julian
    Gyngell, Christopher
    Vears, Danya F.
    [J]. EUROPEAN JOURNAL OF MEDICAL GENETICS, 2023, 66 (01)
  • [5] To share or not to share: public perspectives on genomic data sharing
    Vears, Danya
    Lynch, Fiona
    Best, Stephanie
    Meng, Yan
    Goranitis, Ilias
    Gyngell, Christopher
    [J]. EUROPEAN JOURNAL OF HUMAN GENETICS, 2023, 31 : 686 - 686
  • [6] Sharing genomic data from clinical testing with researchers: public survey of expectations of clinical genomic data management in Queensland, Australia
    Vidgen, Miranda E.
    Kaladharan, Sid
    Malacova, Eva
    Hurst, Cameron
    Waddell, Nicola
    [J]. BMC MEDICAL ETHICS, 2020, 21 (01)
  • [7] Sharing genomic data from clinical testing with researchers: public survey of expectations of clinical genomic data management in Queensland, Australia
    Miranda E. Vidgen
    Sid Kaladharan
    Eva Malacova
    Cameron Hurst
    Nicola Waddell
    [J]. BMC Medical Ethics, 21
  • [8] Anonymizing Patient Genomic Data for Public Sharing Association Studies
    Fernandez-Lozano, Carlos
    Lopez-Campos, Guillermo
    Seoane, Jose A.
    Lopez-Alonso, Victoria
    Dorado, Julian
    Martin-Sanchez, Fernando
    Pazos, Alejandro
    [J]. MEDINFO 2013: PROCEEDINGS OF THE 14TH WORLD CONGRESS ON MEDICAL AND HEALTH INFORMATICS, PTS 1 AND 2, 2013, 192 : 979 - 979
  • [9] Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
    Mhairi Aitken
    Jenna de St. Jorre
    Claudia Pagliari
    Ruth Jepson
    Sarah Cunningham-Burley
    [J]. BMC Medical Ethics, 17
  • [10] Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
    Aitken, Mhairi
    Jorre, Jenna de St.
    Pagliari, Claudia
    Jepson, Ruth
    Cunningham-Burley, Sarah
    [J]. BMC MEDICAL ETHICS, 2016, 17 : 1 - 24
12345