Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies

被引：0
|
作者：
Mhairi Aitken
Jenna de St. Jorre
Claudia Pagliari
Ruth Jepson
Sarah Cunningham-Burley
机构：
[1] University of Edinburgh,Usher Institute of Population Health Sciences and Informatics
[2] Medical School,undefined
[3] The Scottish Collaboration for Public Health Research (SCPHRP),undefined
来源：
BMC Medical Ethics | / 17卷
关键词：
Data linkage; Data sharing; Public engagement; Health informatics;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
下载
收藏
相关论文
共 50 条
  • [1] Public responses to the sharing and linkage of health data for research purposes: a systematic review and thematic synthesis of qualitative studies
    Aitken, Mhairi
    Jorre, Jenna de St.
    Pagliari, Claudia
    Jepson, Ruth
    Cunningham-Burley, Sarah
    BMC MEDICAL ETHICS, 2016, 17 : 1 - 24
  • [2] What is a public health approach to substance use? A qualitative systematic review and thematic synthesis
    Crepault, Jean-Francois
    Russell, Cayley
    Watson, Tara Marie
    Strike, Carol
    Bonato, Sarah
    Rehm, Juergen
    INTERNATIONAL JOURNAL OF DRUG POLICY, 2023, 112
  • [3] Systematic review of participants' attitudes towards data sharing: a thematic synthesis
    Howe, Nicola
    Giles, Emma
    Newbury-Birch, Dorothy
    McColl, Elaine
    JOURNAL OF HEALTH SERVICES RESEARCH & POLICY, 2018, 23 (02) : 123 - 133
  • [4] A systematic review of barriers to data sharing in public health
    van Panhuis, Willem G.
    Paul, Proma
    Emerson, Claudia
    Grefenstette, John
    Wilder, Richard
    Herbst, Abraham J.
    Heymann, David
    Burke, Donald S.
    BMC PUBLIC HEALTH, 2014, 14
  • [5] A systematic review of barriers to data sharing in public health
    Willem G van Panhuis
    Proma Paul
    Claudia Emerson
    John Grefenstette
    Richard Wilder
    Abraham J Herbst
    David Heymann
    Donald S Burke
    BMC Public Health, 14
  • [6] Conceptualisation of health among young people: a protocol for systematic review and thematic synthesis of qualitative studies
    Metsis, Katrin
    Inchley, Joanna
    Williams, Andrew James
    Vrahimis, Sebastian
    Brown, Lamorna
    Sullivan, Frank
    SYSTEMATIC REVIEWS, 2024, 13 (01)
  • [7] Colorectal cancer survivorship: A systematic review and thematic synthesis of qualitative research
    Lim, Chloe Y. S.
    Laidsaar-Powell, Rebekah C.
    Young, Jane M.
    Kao, Steven C.
    Zhang, Yuehan
    Butow, Phyllis
    ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, 2020, 16 : 110 - 110
  • [8] The experience of patient partners in research: a qualitative systematic review and thematic synthesis
    Lauzon-Schnittka J.
    Audette-Chapdelaine S.
    Boutin D.
    Wilhelmy C.
    Auger A.-M.
    Brodeur M.
    Research Involvement and Engagement, 8 (1)
  • [9] Colorectal cancer survivorship: A systematic review and thematic synthesis of qualitative research
    Lim, Chloe Yi Shing
    Laidsaar-Powell, Rebekah Clare
    Young, Jane M.
    Kao, Steven Chuan-Hao
    Zhang, Yuehan
    Butow, Phyllis
    EUROPEAN JOURNAL OF CANCER CARE, 2021, 30 (04)
  • [10] Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies
    Jager, Margot
    de Zeeuw, Janine
    Tullius, Janne
    Papa, Roberta
    Giammarchi, Cinzia
    Whittal, Amanda
    de Winter, Andrea F.
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2019, 16 (21)
12345