Engagement of Canadian Patients with Rare Diseases and Their Families in the Lifecycle of Therapy: A Qualitative Study

被引:0
|
作者
Andrea Young
Devidas Menon
Jackie Street
Walla Al-Hertani
Tania Stafinski
机构
[1] University of Alberta,Health Technology and Policy Unit, School of Public Health
[2] University of Adelaide,School of Public Health
[3] University of Calgary,Cumming School of Medicine
关键词
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
页码:353 / 359
页数:6
相关论文
共 50 条
  • [31] Processes of disengagement and engagement in assertive outreach patients: qualitative study
    Priebe, S
    Watts, J
    Chase, M
    Matanov, A
    BRITISH JOURNAL OF PSYCHIATRY, 2005, 187 : 438 - 443
  • [32] A Qualitative Exploration of Oral Healthcare Needs Amongst Canadian Patients with Rheumatic Diseases and Their Providers
    Stavropoulou, Chrysi
    Billedeau, Corrie
    Protudjer, Jennifer
    Hitchon, Carol
    ARTHRITIS & RHEUMATOLOGY, 2024, 76 : 4380 - 4381
  • [33] Patients’ engagement in primary care research: a case study in a Canadian context
    Bhati D.K.
    Fitzgerald M.
    Kendall C.
    Dahrouge S.
    Research Involvement and Engagement, 6 (1)
  • [34] Strategies to support engagement and continuity of activity during mealtimes for families living with dementia; a qualitative study
    Heather H. Keller
    Lori Schindel Martin
    Sherry Dupuis
    Holly Reimer
    Rebecca Genoe
    BMC Geriatrics, 15
  • [35] Strategies to support engagement and continuity of activity during mealtimes for families living with dementia; a qualitative study
    Keller, Heather H.
    Martin, Lori Schindel
    Dupuis, Sherry
    Reimer, Holly
    Genoe, Rebecca
    BMC GERIATRICS, 2015, 15
  • [36] Advance Care Planning: A Qualitative Study of Dialysis Patients and Families
    Goff, Sarah L.
    Eneanya, Nwamaka D.
    Feinberg, Rebecca
    Germain, Michael J.
    Marr, Lisa
    Berzoff, Joan
    Cohen, Lewis M.
    Unruh, Mark
    CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY, 2015, 10 (03): : 390 - 400
  • [37] Expectations of Multiple Sclerosis Patients and Their Families: A Qualitative Study in Iran
    Abolhassani, Shahla
    Yazdannik, Ahmadreza
    Taleghani, Fariba
    Zamani, Ahmadreza
    IRANIAN RED CRESCENT MEDICAL JOURNAL, 2015, 17 (02)
  • [38] Oncology nurses' communication challenges with patients and families: A qualitative study
    Banerjee, Smita C.
    Manna, Ruth
    Coyle, Nessa
    Shen, Megan Johnson
    Pehrson, Cassandra
    Zaider, Talia
    Hammonds, Stacey
    Krueger, Carol A.
    Parker, Patricia A.
    Bylund, Carma L.
    NURSE EDUCATION IN PRACTICE, 2016, 16 (01) : 193 - 201
  • [39] Short bowel syndrome and the impact on patients and their families: a qualitative study
    Sowerbutts, A. M.
    Panter, C.
    Dickie, G.
    Bennett, B.
    Ablett, J.
    Burden, S.
    Lal, S.
    JOURNAL OF HUMAN NUTRITION AND DIETETICS, 2020, 33 (06) : 767 - 774
  • [40] Challenges of Truth-telling to Patients and Their Families: A Qualitative Study
    Khaki, Soore
    Hosseini, Mohammad Ali
    Mohammadi-shahboulaghi, Farahnaz
    Can, Gulbeyaz
    Fallahi-Khoshknab, Masoud
    INTERNATIONAL JOURNAL OF CANCER MANAGEMENT, 2024, 17 (01)