The impact of demographic and clinical characteristics on the trajectories of health-related quality of life among patients with Fabry disease

被引：0
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作者：
Solrun Sigurdardottir
Birgitte Bjerkely
Trond G. Jenssen
Per Mathisen
Charlotte von der Lippe
Kristin Ørstavik
Ketil Heimdal
Dag Olav Dahle
Mina Susanne Weedon-Fekjær
Olga Solberg
Hege K. Pihlstrøm
机构：
[1] Oslo University Hospital,Centre for Rare Disorders
[2] Oslo University Hospital,Department of Surgery, Inflammation Medicine and Transplantation, Section of Nephrology
[3] Rikshospitalet HF,Institute of Clinical Medicine, Faculty of Medicine
[4] University of Oslo,Department of Cardiology
[5] Oslo University Hospital,Department of Neurology, Section for Rare Neuromuscular Disorders
[6] Rikshospitalet HF,Department of Medical Genetics
[7] Oslo University Hospital,undefined
[8] Rikshospitalet HF,undefined
[9] Oslo University Hospital,undefined
[10] Rikshospitalet HF,undefined
来源：
Orphanet Journal of Rare Diseases | / 16卷
关键词：
Quality of life; HRQOL; SF-36; Longitudinal studies; Fabry disease; ERT; Kidney disease; Neuropathic pain;
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