The internet user profile of Italian families of patients with rare diseases: a web survey

被引：0
|
作者：
Alberto E Tozzi
Rita Mingarelli
Eleonora Agricola
Michaela Gonfiantini
Elisabetta Pandolfi
Emanuela Carloni
Francesco Gesualdo
Bruno Dallapiccola
机构：
[1] Bambino Gesù Children’s Hospital,Epidemiology Unit
来源：
Orphanet Journal of Rare Diseases | / 8卷
关键词：
Internet; Telemedicine; Rare diseases;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
收藏
相关论文
共 50 条
  • [41] The role of health care professionals in smoking cessation among patients with pulmonary diseases: an Italian multicentric survey
    Demichelis, S.
    Rapetti, S. G.
    Galetta, D.
    Bruno, A.
    Bria, E.
    Pilotto, S.
    Valmadre, G.
    Ricci, D.
    Gianetta, M.
    Vallone, S.
    Pacchiana, M. V.
    Novello, S.
    ANNALS OF ONCOLOGY, 2015, 26 : 75 - 76
  • [42] COVID-19 IN ITALIAN PATIENTS WITH RHEUMATIC AUTOIMMUNE SYSTEMIC DISEASES: RESULTS OF A NATIONWIDE SURVEY STUDY
    Ferri, C.
    Giuggioli, D.
    Raimondo, V.
    Dagna, L.
    Riccieri, V.
    Zanatta, E.
    Guiducci, S.
    Tavoni, A.
    Foti, R.
    Cuomo, G.
    De Angelis, R.
    Cozzi, F.
    Murdaca, G.
    Cavazzana, I.
    Romeo, N.
    Codullo, V.
    Ingegnoli, F.
    Pellegrini, R.
    Varcasia, G.
    Della Rossa, A.
    De Santis, M.
    Abignano, G.
    Colaci, M.
    Caminiti, M.
    L'andolina, M.
    Lubrano, E.
    Spinella, A.
    Lumetti, F.
    De Luca, G.
    Randone, S. Bellando
    Visalli, E.
    Bilia, S.
    Masini, F.
    Pellegrino, G.
    Pigatto, E.
    Generali, E.
    Franceschini, F.
    Mariano, G. Pagano
    Barsotti, S.
    Pettiti, G.
    Zanframundo, G.
    Brittelli, R.
    Aiello, V.
    Scorpiniti, D.
    Ferrari, T.
    Caminiti, R.
    Campochiaro, C.
    Gigliotti, P.
    Cecchetti, R.
    Olivo, D.
    ANNALS OF THE RHEUMATIC DISEASES, 2021, 80 : 906 - 907
  • [43] The importance of social media for patients and families affected by congenital anomalies: A Facebook cross-sectional analysis and user survey
    Jacobs, Robyn
    Boyd, Leanne
    Brennan, Kirsty
    Sinha, C. K.
    Giuliani, Stefano
    JOURNAL OF PEDIATRIC SURGERY, 2016, 51 (11) : 1766 - 1771
  • [44] Survey on patients with undiagnosed diseases in Japan: potential patient numbers benefiting from Japan’s initiative on rare and undiagnosed diseases (IRUD)
    Takeya Adachi
    Noriaki Imanishi
    Yasushi Ogawa
    Yoshihiko Furusawa
    Yoshihiko Izumida
    Yoko Izumi
    Makoto Suematsu
    Orphanet Journal of Rare Diseases, 13
  • [45] Survey on patients with undiagnosed diseases in Japan: potential patient numbers benefiting from Japan's initiative on rare and undiagnosed diseases (IRUD)
    Adachi, Takeya
    Imanishi, Noriaki
    Ogawa, Yasushi
    Furusawa, Yoshihiko
    Izumida, Yoshihiko
    Izumi, Yoko
    Suematsu, Makoto
    ORPHANET JOURNAL OF RARE DISEASES, 2018, 13
  • [46] LIVING WITH INFLAMMATORY BOWEL DISEASES: PATIENTS' PERCEPTIONS AND UNMET NEEDS FROM A SINGLE-CENTER ITALIAN SURVEY
    Larussa, T.
    Flauti, D.
    Suraci, E.
    Imeneo, M.
    Marasco, R.
    Abenavoli, L.
    Luzza, F.
    DIGESTIVE AND LIVER DISEASE, 2019, 51 : E230 - E230
  • [47] The role of health professionals in informing patients with pulmonary diseases to stop smoking: final data of an Italian multicentric survey
    Demichelis, S.
    Rapetti, S. G.
    Galetta, D.
    Catino, A.
    Ricci, D.
    Moretti, A. M.
    Bria, E.
    Pilotto, S.
    Bruno, A.
    Valmadre, G.
    Bandelli, G. P.
    Trisolini, R.
    Gianetta, M.
    Pacchiana, M. V.
    Vallone, S.
    Novello, S.
    ANNALS OF ONCOLOGY, 2016, 27
  • [48] The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey
    Rihm, Lydia
    Dreier, Mareike
    Rezvani, Farhad
    Wiegand-Grefe, Silke
    Dirmaier, Joerg
    ORPHANET JOURNAL OF RARE DISEASES, 2022, 17 (01)
  • [49] The psychosocial situation of families caring for children with rare diseases during the COVID-19 pandemic: results of a cross-sectional online survey
    Lydia Rihm
    Mareike Dreier
    Farhad Rezvani
    Silke Wiegand-Grefe
    Jörg Dirmaier
    Orphanet Journal of Rare Diseases, 17
  • [50] Patients' Perspectives About the Treatment They Receive for Cardiovascular Diseases and Mental Disorders: Web-Based Survey Study
    Courtet, Philippe
    Pecout, Catherine
    Laine-Pellet, Anne-Felice
    Chekroun, Michael
    Avril, Charlotte
    Mourad, Jean-Jacques
    JMIR FORMATIVE RESEARCH, 2022, 6 (03)
12345