共 50 条
- [1] The internet user profile of Italian families of patients with rare diseases: a web survey ORPHANET JOURNAL OF RARE DISEASES, 2013, 8
- [4] The Internet and medicine: Building a community for patients with rare diseases JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2001, 285 (06): : 805 - 805
- [6] Awareness of rare and genetic neurological diseases among italian neurologist. A national survey Neurological Sciences, 2020, 41 : 1567 - 1570
- [10] Engagement of Canadian Patients with Rare Diseases and Their Families in the Lifecycle of Therapy: A Qualitative Study PATIENT-PATIENT CENTERED OUTCOMES RESEARCH, 2018, 11 (03): : 353 - 359