The urgent need to empower rare disease organizations in China: an interview-based study

被引：0
|
作者：
Xuefeng Li
Zijuan Lu
Jianyong Zhang
Xiangyu Zhang
Shu Zhang
Jincheng Zhou
Bingzhe Li
Li Ou
机构：
[1] The Third Affiliated Hospital of Shenzhen University,Shenzhen Luohu People’s Hospital
[2] Chinese Academy of Sciences,Key Laboratory of Regenerative Biology, Guangdong Provincial Key Laboratory of Stem Cell and Regenerative Medicine, South China Institute for Stem Cell Biology and Regenerative Medicine, Guangzhou Institutes of Biomedicine and H
[3] Guangzhou Medical University,The Sixth Affiliated Hospital of Guangzhou Medical University, Qingyuan People’s Hospital; State Key Laboratory of Respiratory Disease, Sino
[4] Tongji University,French Hoffmann Institute, School of Basic Medical Sciences
[5] Jinhaishiji,School of Humanities
[6] University of Minnesota,School of Statistics
[7] The Affiliated Stomatology Hospital of Kunming Medical University,Department of Oral Implantology
[8] Amgen Inc.,Center for Design and Analysis
[9] Oklahoma State University,School of Electrical and Computer Engineering
[10] University of Minnesota,Gene Therapy Center, Department of Pediatrics
来源：
Orphanet Journal of Rare Diseases | / 15卷
关键词：
Rare disease; Patient organizations; Questionnaire; China;
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