The Experience of Crisis in Families of Individuals with Autism Spectrum Disorder Across the Lifespan

It is well-established that parents of individuals with autism spectrum disorder (ASD) experience significant stress in their caregiving role, and research findings indicate that chronic stressors can act as a precipitant to crisis. In the present study, we examined the experience of crisis in families of individuals with ASD from early childhood to adulthood. One hundred and fifty-seven comments provided by family members in response to an online survey were coded using grounded theory methods. We explored three components of crisis drawn from the comments: antecedents (precipitating events and the context of crisis), behaviors (the nature of crisis), and consequences (outcomes and reactions to crisis). Similarities and differences in the crisis experiences among varying age groups are discussed, as well as implications for practice and future research.