The aims of this paper were to develop an internet-based support and coaching model for young people with autism spectrum disorder (ASD) and/or attention-deficit/hyperactivity disorder (ADHD), and to validate the model. A user-centred design was applied to develop a model for internet-based support and coaching, where individuals received 8-week support via internet (chat). The model was validated by 10 individuals, 15–26 years of age, with ASD and/or ADHD. Self-report questionnaires [Sense of Coherence (SOC), the Rosenberg Self Esteem Scale, the Manchester Short Assessment of Quality of Life, Montgomery Åsberg Depression Rating Scale, and the Hospital Anxiety and Depression Scale] were distributed before and after intervention. A structured interview regarding the quality of the model, the Patient perspective of Care and Rehabilitation process (POCR), was used after the intervention. The validation showed significant improvement of SOC, self-esteem and subjective Quality of Life at follow-up and the majority perceived high fulfilment/importance on the POCR. In conclusion, The model can be an important complement to other interventions for young people with ASD and/or ADHD.
机构:
Appalachian State University, Boone, NCSchool of Humanities and Social Sciences, Pennsylvania State University, The Behrend College, 4951 College Drive, Erie, 16563, PA
机构:
Massachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Harvard Med Sch, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Ekhlaspour, Laya
Baskaran, Charumathi
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Massachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Harvard Med Sch, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Baskaran, Charumathi
Campoverde, Karen Joanie
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Massachusetts Gen Hosp, Neuroendocrine Unit, 101 Merrimac St,6th Floor,Off 615, Boston, MA 02114 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Campoverde, Karen Joanie
Sokoloff, Natalia Cano
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Massachusetts Gen Hosp, Neuroendocrine Unit, 101 Merrimac St,6th Floor,Off 615, Boston, MA 02114 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Sokoloff, Natalia Cano
Neumeyer, Ann M.
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Massachusetts Gen Hosp, Lurie Ctr Autism, One Maguire Rd, Lexington, MA 02421 USA
Harvard Med Sch, One Maguire Rd, Lexington, MA 02421 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Neumeyer, Ann M.
Misra, Madhusmita
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Massachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
Harvard Med Sch, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USAMassachusetts Gen Hosp Children, Pediat Endocrine Unit, 55 Fruit St,Yawkey 6c, Boston, MA 02114 USA
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Univ S Florida, Coll Publ Hlth, Tampa, FL USA
H Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, Tampa, FL USA
H Lee Moffitt Canc Ctr & Res Inst, Dept Hlth Outcomes & Behav, 4117 Fowler Ave, Tampa, FL 33617 USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Buro, Acadia W.
Gray, Heewon L.
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Univ S Florida, Coll Publ Hlth, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Gray, Heewon L.
Kirby, Russell S.
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Univ S Florida, Coll Publ Hlth, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Kirby, Russell S.
Marshall, Jennifer
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Univ S Florida, Coll Publ Hlth, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Marshall, Jennifer
Strange, Mikaela
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Univ S Florida, Coll Publ Hlth, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Strange, Mikaela
Hasan, Syed
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Univ S Florida, Coll Publ Hlth, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA
Hasan, Syed
Holloway, Jamie
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Univ S Florida, Sch Phys Therapy & Rehabil Sci, Tampa, FL USAUniv S Florida, Coll Publ Hlth, Tampa, FL USA