Attitudes of Filipino parents of children with Down syndrome on noninvasive prenatal testing

被引:0
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作者
Leniza G. de Castro-Hamoy
Ma-am Joy R. Tumulak
Maria Stephanie Fay S. Cagayan
Peter A. Sy
Nona Rachel C. Mira
Mercy Y. Laurino
机构
[1] University of the Philippines Manila,Department of Pediatrics, College of Medicine
[2] University of the Philippines Manila,Institute of Human Genetics
[3] University of the Philippines Manila,Department of Obstetrics and Gynecology, Department of Pharmacology and Toxicology, College of Medicine
[4] University of the Philippines Diliman,Department of Philosophy, College of Social Sciences and Philosophy
[5] University of the East Ramon Magsaysay Memorial Medical Center,College of Nursing
[6] Inc,undefined
[7] Seattle Cancer Care Alliance,undefined
来源
关键词
Down syndrome; Noninvasive prenatal testing; Parents; Qualitative; Phenomenology;
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摘要
Globally, there has been an increasing uptake of noninvasive prenatal testing (NIPT). In the Philippines, the test is currently available through private laboratories and can be availed by families who can afford the out-of-pocket cost. In a country where elective termination of pregnancy is not an option, the question arises as to the relevance of this testing, even among health professionals. This is an exploratory qualitative study that explored the attitudes of Filipino parents of children with Down syndrome (DS) toward NIPT using thematic analysis of in-depth interviews. Study participants acknowledged the value of NIPT in providing early diagnosis and, subsequently, emotional, mental, spiritual, and financial preparation. This said, they also emphasized that such early detection may cause anxiety and even thoughts of termination for some, despite abortion being against the law and predominant religious beliefs. For those undergoing NIPT and receiving positive results, study participants highlighted the need to receive proper and nonbiased counseling from both health professionals and parents who have children with DS.
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页码:411 / 425
页数:14
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