Measuring quality of life of primary antibody deficiency patients using a disease-specific health-related quality of life questionnaire for common variable immunodeficiency (CVID_QoL)

被引:0
|
作者
Jintana B. Andersen
Knut Midttun
Kristin J. B. Feragen
机构
[1] Oslo University Hospital,Centre for Rare Disorders
关键词
Quality of life; Primary antibody deficiency; Survey and questionnaire; Common variable immunodeficiency; Psychometrics; Patient-reported outcomes; Reliability; Validity; Disease-specific;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] The NFTI-QOL: A Disease-Specific Quality of Life Questionnaire for Neurofibromatosis 2
    Hornigold, Rachael E.
    Golding, John F.
    Leschziner, Guy
    Obholzer, Rupert
    Gleeson, Michael J.
    Thomas, Nick
    Walsh, Daniel
    Saeed, Shakeel
    Ferner, Rosalie E.
    JOURNAL OF NEUROLOGICAL SURGERY PART B-SKULL BASE, 2012, 73 (02) : 104 - 111
  • [42] Evaluation of disease-specific health-related quality of life in patients with pulmonary arterial hypertension
    Zlupko, Michael
    Harhay, Michael O.
    Gallop, Robert
    Shin, Jennifer
    Archer-Chicko, Chris
    Patel, Rajesh
    Palevsky, Harold I.
    Taichman, Darren B.
    RESPIRATORY MEDICINE, 2008, 102 (10) : 1431 - 1438
  • [43] Correlation of disease-specific health-related quality of life scores for patients with colorectal cancer
    Anthony, T
    Kim, LT
    Sarosi, G
    Nwariaku, F
    Hynan, L
    Jones, C
    Turnage, RH
    INTERNATIONAL JOURNAL OF CANCER, 2002, : 225 - 225
  • [44] THE INFLUENCE OF DISEASE-SPECIFIC SYMPTOMS ON THE HEALTH-RELATED QUALITY OF LIFE IN PATIENTS WITH ATRIAL FIBRILLATION
    Wilke, T.
    Mueller, S.
    Bauersachs, R.
    Breithardt, G.
    VALUE IN HEALTH, 2012, 15 (07) : A379 - A379
  • [45] Assessment of health-related quality of life in asthma and rhinitis using disease-specific instruments
    Juniper, EF
    FROM GENETICS TO QUALITY OF LIFE: THE OPTIMAL TREATMENT AND MANAGEMENT OF ASTHMA, 1996, : 209 - 214
  • [46] Validation of the AF-QoL, a disease-specific quality of life questionnaire for patients with atrial fibrillation
    Arribas, Fernando
    Miguel Ormaetxe, Jose
    Peinado, Rafael
    Perulero, Nuria
    Ramirez, Patricia
    Badia, Xavier
    EUROPACE, 2010, 12 (03): : 364 - 370
  • [47] Measuring health-related quality of life in patients with rare disease
    William R. Lenderking
    Milena Anatchkova
    Robin Pokrzywinski
    Anne Skalicky
    Mona L. Martin
    Heather Gelhorn
    Journal of Patient-Reported Outcomes, 5
  • [48] Measuring health-related quality of life in patients with rare disease
    Lenderking, William R.
    Anatchkova, Milena
    Pokrzywinski, Robin
    Skalicky, Anne
    Martin, Mona L.
    Gelhorn, Heather
    JOURNAL OF PATIENT-REPORTED OUTCOMES, 2021, 5 (01)
  • [49] Assessing Health-Related Quality of Life of Patients with Pulmonary Embolism with the Heart QoL Questionnaire
    Gkena, Niki
    Kirgou, Paraskevi
    Lampropoulos, Ioannis C.
    Fradelos, Evangelos C.
    Papagiannis, Dimitrios
    Daniil, Zoe
    Gourgoulianis, Konstantinos I.
    Malli, Foteini
    MEDICINA-LITHUANIA, 2025, 61 (03):
  • [50] Development and Validation of a Disease-Specific Health-Related Quality of Life (HRQL) Questionnaire for Esophageal Achalasia (EA)
    Ortiz, Vicente
    Garrigues, Vicente
    Casanova, Carlos
    Bujanda, Luis
    Moreno, Eduardo
    Montserrat, Antonia
    Serra, Jordi
    Gonzalez Suarez, Begona
    Gisbert, Javier P.
    Rodriguez-Tellez, Manuel
    Montoro, Miguel A.
    Ponce, Julio
    GASTROENTEROLOGY, 2009, 136 (05) : A382 - A382