Autism in Southeast Europe: A Survey of Caregivers of Children with Autism Spectrum Disorders

被引：46

作者：

Daniels, Amy M. ^{[1
]}

Como, Ariel ^{[2
]}

Herguner, Sabri ^{[3
]}

Kostadinova, Krasimira ^{[4
]}

Stosic, Jasmina ^{[5
]}

Shih, Andy ^{[6
]}

机构：

[1] Simons Fdn, 160 5th Ave, New York, NY 10010 USA

[2] Univ Hosp Ctr Mother Teresa, Dept Psychiat, RR Dibres, Tirana 370, Albania

[3] Necmettin Erbakan Univ, Meram Fac Med, Dept Child & Adolescent Psychiat, Konya, Turkey

[4] Natl Ctr Publ Hlth & Analyses, Blvd Akad Ivan Evstratiev Geshov 15, Sofia 1431, Bulgaria

[5] Univ Zagreb, Fac Educ & Rehabil Sci, 83f, Zagreb 10000, Croatia

[6] Autism Speaks, 1 E,33rd St, New York, NY 10016 USA

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2017年 / 47卷 / 08期

关键词：

Southeast Europe; Caregivers; Diagnosis; Services; Stigma; QUALITY-OF-LIFE; PARENTS; STIGMA; PREVALENCE; DISABILITY; DIAGNOSIS; HEALTH; AGE;

D O I：

10.1007/s10803-017-3145-x

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

The aim of this study was to understand the diagnostic, service and lived experiences of families affected by ASD in Southeast Europe. A total of 758 caregivers from Albania, Bulgaria, Croatia and Turkey were surveyed from 2013 to 2015 about characteristics of the child with ASD; service encounters; and caregiver perceptions. The average age at first concern was 24.4 months (SD 11.8) and at diagnosis, 40.0 months (SD 19.0). Psychiatrists were the most common diagnostician; most children received some ASD-related service, most frequently speech and language therapy. Caregivers endorsed challenges in access to care and perceived stigma. Despite country differences, findings relative to age at first concern, disparities in access and service utilization, and stigma speak to common regional needs.

引用

页码：2314 / 2325

页数：12

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