Integrating Public Health and Deliberative Public Bioethics: Lessons from the Human Genome Project Ethical, Legal, and Social Implications Program

被引:4
|
作者
Meagher, Karen M. [1 ]
Lee, Lisa M. [1 ]
机构
[1] Presidential Commiss Study Bioeth Issues, 1425 New York Ave NW,Ste C-100, Washington, DC 20005 USA
关键词
SCIENCE POLICY; UNITED-STATES; DEMOCRACY; COMMISSIONS; LIBERTY; SCHOOLS;
D O I
10.1177/003335491613100110
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Public health policy works best when grounded in firm public health standards of evidence and widely shared social values. In this article, we argue for incorporating a specific method of ethical deliberation deliberative public bioethics into public health. We describe how deliberative public bioethics is a method of engagement that can be helpful in public health. Although medical, research, and public health ethics can be considered some of what bioethics addresses, deliberative public bioethics offers both a how and where. Using the Human Genome Project Ethical, Legal, and Social Implications program as an example of effective incorporation of deliberative processes to integrate ethics into public health policy, we examine how deliberative public bioethics can integrate both public health and bioethics perspectives into three areas of public health practice: research, education, and health policy. We then offer recommendations for future collaborations that integrate deliberative methods into public health policy and practice.
引用
收藏
页码:44 / 51
页数:8
相关论文
共 50 条
  • [41] Family-level impact of genetic testing: integrating health economics and ethical, legal, and social implications
    Smith, Hadley Stevens
    McGuire, Amy L.
    Wittenberg, Eve
    Lavelle, Tara A.
    PERSONALIZED MEDICINE, 2021, 18 (03) : 209 - 212
  • [42] Integrating HIV Cluster Analysis in Everyday Public Health Practice: Lessons Learned From a Public Health--Academic Partnership
    Fulton, John
    Novitsky, Vladimir
    Gillani, Fizza
    Guang, August
    Steingrimsson, Jon
    Khanna, Aditya
    Hague, Joel
    Dunn, Casey
    Hogan, Joseph
    Howe, Katharine
    Macaskill, Meghan
    Bhattarai, Lila
    Bertrand, Thomas
    Bandy, Utpala
    Kantor, Rami
    JAIDS-JOURNAL OF ACQUIRED IMMUNE DEFICIENCY SYNDROMES, 2024, 97 (01) : 48 - 54
  • [43] Public policy versus private rights: The medical, social, ethical, and legal implications of the testing of newborns for HIV
    Ploughman, P
    AIDS & PUBLIC POLICY JOURNAL, 1995, 10 (04): : 182 - 204
  • [44] Public Perceptions of Ethical, Legal and Social Implications of Pre-implantation Genetic Diagnosis (PGD) in Malaysia
    Olesen, Angelina P.
    Nor, Siti Nurani Mohd
    Amin, Latifah
    Ngah, Anisah Che
    SCIENCE AND ENGINEERING ETHICS, 2017, 23 (06) : 1563 - 1580
  • [45] Public Perceptions of Ethical, Legal and Social Implications of Pre-implantation Genetic Diagnosis (PGD) in Malaysia
    Angelina P. Olesen
    Siti Nurani Mohd Nor
    Latifah Amin
    Anisah Che Ngah
    Science and Engineering Ethics, 2017, 23 : 1563 - 1580
  • [47] Social Regulation of Human Gene Expression: Mechanisms and Implications for Public Health
    Cole, Steven W.
    AMERICAN JOURNAL OF PUBLIC HEALTH, 2013, 103 : 84 - 92
  • [48] Searching for lessons from the New Orleans Health Department: Implications for public health practice
    Ransom, James
    Rogers, Valerie N.
    Stephens, Kevin U.
    JOURNAL OF PUBLIC HEALTH MANAGEMENT AND PRACTICE, 2006, 12 (06): : 594 - 596
  • [49] Integrating cultural values, beliefs, and customs into pregnancy and postpartum care: Lessons learned from a Hawaiian public health nursing project
    Mayberry, LJ
    Affonso, DD
    Shibuya, J
    Clemmens, D
    JOURNAL OF PERINATAL & NEONATAL NURSING, 1999, 13 (01) : 15 - 26
  • [50] Lessons Learned From a Peer Writing Coach Program in a School of Public Health
    Beard, Jennifer
    Monteiro, Ryann
    Price-Oreyomi, Mahogany B.
    Edouard, Vanessa Boland
    Murphy-Phillips, Mary
    PUBLIC HEALTH REPORTS, 2020, 135 (05) : 700 - 707