Next-of-Kin's Perspectives of End-of-Life Care

被引:9
|
作者
Boucher, Jean [1 ]
Bova, Carol [1 ]
Sullivan-Bolyai, Susan [1 ]
Theroux, Rosemary [1 ]
Klar, Robin [1 ]
Terrien, Jill [1 ]
Kaufman, David A. [2 ]
机构
[1] Univ Massachusetts, Grad Sch Nursing, Worcester, MA 01655 USA
[2] St Vincent Hosp, Worcester, MA 01604 USA
关键词
communication; end-of-life care; family preferences and values; next-of-kin; PALLIATIVE CARE; CONTROLLED-TRIAL; DYING PATIENTS; MEDICAL-CARE; GOOD DEATH; FAMILIES; CAREGIVERS; PHYSICIANS; NURSES; SKILLS;
D O I
10.1097/NJH.0b013e3181c76d53
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
The purpose of this article was to describe the next-of-kin's perspective of the end-of-life (EOL) experiences associated with the death of a family member or close friend. The quality of EOL care from the next-of-kin's perspective given to their loved one needs further study in the context of a community setting focus. A secondary analysis of data from a survey of a random sample of dying experiences in the community setting included qualitative descriptive analysis of open-ended survey data and content analysis used to count the number of positive, negative, mixed, and not applicable responses. Qualitative content analysis of 186 next-of-kin responses revealed two themes: (1) communication and (2) family values and preferences including three subthemes of having a supportive environment to secure a peaceful death with dignity and respect, the desire to be present at the time of death, and attending to the needs and wishes of the dying individual and family. The need for palliative care services in institutionalized settings, continuity of provider care (physician and nurse), family presence, and support for caregiver and financial concerns with hospice services was identified. Communication remains an essential component in all aspects of EOL care with further examination involving the loved one's perspectives.
引用
收藏
页码:41 / 50
页数:10
相关论文
共 50 条
  • [31] Family perspectives on end-of-life care at the last place of care
    Teno, JM
    Clarridge, BR
    Casey, V
    Welch, LC
    Wetle, T
    Shield, R
    Mor, V
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2004, 291 (01): : 88 - 93
  • [32] Constructing stability - a classic grounded theory of next-of-kin in palliative cancer care
    Carina Werkander Harstäde
    Anna Sandgren
    [J]. BMC Palliative Care, 19
  • [33] End-of-Life Care, Not End-of-Life Spending
    Jha, Ashish K.
    [J]. JAMA-JOURNAL OF THE AMERICAN MEDICAL ASSOCIATION, 2018, 320 (07): : 631 - 632
  • [34] "He Got His Last Wishes"-Next-of-Kin Ways of Knowing Patient's End of Life Preferences and Affirming Clinical Conformity
    Wittich, Angelina
    Williams, Beverly
    Woodby, Lesa
    Bailey, F. Amos
    Burgio, Kathryn
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2012, 43 (02) : 434 - 435
  • [35] Next-of-kin caregivers in palliative home care - from control to loss of control
    Munck, Berit
    Fridlund, Bengt
    Martensson, Jan
    [J]. JOURNAL OF ADVANCED NURSING, 2008, 64 (06) : 578 - 586
  • [36] Sense of coherence experienced by next-of-kin in hospital-based home care
    Milberg, A
    Strang, P
    [J]. JOURNAL OF PALLIATIVE CARE, 2002, 18 (03) : 216 - 216
  • [37] Does coercion matter? Supporting young next-of-kin in mental health care
    Martinsen, Elin Hakonsen
    Weimand, Bente
    Norvoll, Reidun
    [J]. NURSING ETHICS, 2020, 27 (05) : 1270 - 1281
  • [38] End-of-life care in children: the Brazilian and the international perspectives
    Lago, Patricia M.
    Devictor, Denis
    Piva, Jefferson P.
    Bergounioux, Jean
    [J]. JORNAL DE PEDIATRIA, 2007, 83 (02) : S109 - S116
  • [39] Sikh Perspectives towards Death and End-of-Life Care
    Ebrahim, Shanil
    Bance, Sheena
    Bowman, Kerry W.
    [J]. JOURNAL OF PALLIATIVE CARE, 2011, 27 (02) : 170 - 174
  • [40] Parent Perspectives of Neonatal Intensive Care at the End-of-Life
    Currie, Erin R.
    Christian, Becky J.
    Hinds, Pamela S.
    Perna, Samuel J.
    Robinson, Cheryl
    Day, Sara
    Meneses, Karen
    [J]. JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES, 2016, 31 (05): : 478 - 489