Epidermolysis Bullosa Care in Austria and the Epidermolysis Bullosa House Austria
被引:7
|
作者:
Pohla-Gubo, Gabriela
论文数: 0引用数: 0
h-index: 0
机构:
Paracelsus Med Univ Salzburg, EB House Austria, Dept Dermatol, A-5020 Salzburg, AustriaParacelsus Med Univ Salzburg, EB House Austria, Dept Dermatol, A-5020 Salzburg, Austria
Pohla-Gubo, Gabriela
[1
]
论文数: 引用数:
h-index:
机构:
Hintner, Helmut
[1
]
机构:
[1] Paracelsus Med Univ Salzburg, EB House Austria, Dept Dermatol, A-5020 Salzburg, Austria
Epidermolysis bullosa;
Multidisciplinary care;
Epidermolysis Bullosa House Austria;
D O I:
10.1016/j.det.2010.02.008
中图分类号:
R75 [皮肤病学与性病学];
学科分类号:
100206 ;
摘要:
The Epidermolysis Bullosa (EB) House Austria is a special unit for the multidisciplinary management of children and adults with EB. Major advances in EB care have been made possible by a multidisciplinary approach including most of the medical specialties offered at the General Hospital in Salzburg. The EB House Austria is independently funded by the support group DEBRA Austria. As the EB House Austria fulfills all criteria for a European Union reference center, as stated by the Rare Disease Task Force in 2005, the authors hope that in the near future the EB House Austria will be accepted as such on a European Union level and that they can soon get financial support from this side. This support would be of even more importance in the moment when a causative cure, which is of course supposed to be a cost-intensive gene therapy, is available.
机构:
Univ Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Univ Hosp Birmingham Natl Hlth Serv Fdn Trust, Dept Dermatol, Epidermolysis Bullosa Unit, Birmingham, W Midlands, EnglandUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Bardhan, Ajoy
Bruckner-Tuderman, Leena
论文数: 0引用数: 0
h-index: 0
机构:
Univ Freiburg, Med Ctr, Dept Dermatol, Freiburg, GermanyUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Bruckner-Tuderman, Leena
Chapple, Iain L. C.
论文数: 0引用数: 0
h-index: 0
机构:
Univ Birmingham, Birmingham Dent Sch & Hosp, Periodontal Res Grp, Birmingham, W Midlands, England
Birmingham Community Hlth Natl Hlth Serv Trust, Birmingham, W Midlands, EnglandUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Chapple, Iain L. C.
Fine, Jo-David
论文数: 0引用数: 0
h-index: 0
机构:
Vanderbilt Univ, Sch Med, Nashville, TN 37212 USA
Natl Epidermolysis Bullosa Registry, Nashville, TN USAUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Fine, Jo-David
Harper, Natasha
论文数: 0引用数: 0
h-index: 0
机构:
Univ Hosp Birmingham Natl Hlth Serv Fdn Trust, Dept Dermatol, Epidermolysis Bullosa Unit, Birmingham, W Midlands, EnglandUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
Harper, Natasha
Has, Cristina
论文数: 0引用数: 0
h-index: 0
机构:
Univ Freiburg, Med Ctr, Dept Dermatol, Freiburg, GermanyUniv Birmingham, Inst Clin Sci, Birmingham, W Midlands, England
机构:
Univ New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Kho, Yong Chern
Rhodes, Lesley M.
论文数: 0引用数: 0
h-index: 0
机构:
Univ New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Rhodes, Lesley M.
Robertson, Susan J.
论文数: 0引用数: 0
h-index: 0
机构:
Royal Childrens Hosp Melbourne, Melbourne, Vic, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Robertson, Susan J.
Su, John
论文数: 0引用数: 0
h-index: 0
机构:
Royal Childrens Hosp Melbourne, Melbourne, Vic, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Su, John
Varigos, George
论文数: 0引用数: 0
h-index: 0
机构:
Royal Childrens Hosp Melbourne, Melbourne, Vic, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Varigos, George
Robertson, Ian
论文数: 0引用数: 0
h-index: 0
机构:
Univ Queensland, Fac Med, Brisbane, Qld, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Robertson, Ian
Hogan, Peter
论文数: 0引用数: 0
h-index: 0
机构:
Childrens Hosp Westmead, Westmead, NSW, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Hogan, Peter
Orchard, David
论文数: 0引用数: 0
h-index: 0
机构:
Royal Childrens Hosp Melbourne, Melbourne, Vic, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia
Orchard, David
Murrell, Dedee F.
论文数: 0引用数: 0
h-index: 0
机构:
Univ New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, AustraliaUniv New S Wales, Dept Dermatol, St George Hosp, Sydney, NSW 2217, Australia