Patients' and carers' perspective of the impact of heart failure on quality of life: a qualitative study

被引:9
|
作者
Nwosu, Winifred Onyinyechi [1 ]
Rajani, Ronak [2 ]
McDonaugh, Theresa [3 ]
Driscoll, Elizabeth [1 ]
Hughes, Lyndsay D. [1 ]
机构
[1] Kings Coll London, Inst Psychiat Psychol & Neurosci Ioppn, Hlth Psychol Sect, London, England
[2] Guys & St Thomas NHS Fdn Trust London, Cardiol Dept, London, England
[3] Kings Coll Hosp NHS Fdn Trust London, Cardiol Dept, London, England
关键词
Heart failure; quality of life; carers; informal carers; patients; heart failure management; DEPRESSION; PREVALENCE; UNDERSTAND; CAREGIVERS; DIAGNOSIS; OUTCOMES; HEALTH; WANT;
D O I
10.1080/13548506.2021.1922719
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Heart failure (HF) is a syndrome associated with high mortality and morbidity. HF patients tend to be at a high risk of poor clinical and psychosocial outcomes. This study aimed to capture patients' and carers perspectives of HF, the impact on their health reported QoL, and the factors associated with their poor health outcomes. To explore HF patients' and carers' views on their QoL since diagnosis. This study used a cross-sectional, qualitative design with semi-structured interviews conducted with participating patients and carers. Thirteen adults (> 18 years) with HF and 21 carers were interviewed over the telephone, following a semi-structured interview schedule. Interviews were transcribed verbatim and analysed using inductive thematic analysis. Three main themes were identified, with an overarching theme . Themes included impact on patients' lifestyle including diet, smoking and inability to part-take in social activities, adjusting to HF diagnosis and co-morbidity management, and psychological/mental health issues such as anxiety and depression. Patients with HF are at high-risk of various issues which can negatively impact their QoL. Additionally, Carers play a vital role in the management of HF patients. Effective patient centred care and better communication between patients, carers and healthcare professionals is vital in HF management.
引用
收藏
页码:1381 / 1396
页数:16
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