Social Problems and Coping Mechanisms in Families of Children with Special Needs

被引:7
|
作者
Yuksel, Hulya [1 ]
Tanriverdi, Arzu [2 ]
机构
[1] Izmir Demokrasi Univ, Izmir, Turkey
[2] Inonu Univ, Malatya, Turkey
关键词
Individuals with special needs; social problems; stigma; coping mechanisms; focus groups; SPECIAL-EDUCATION; PARENTS; SUPPORT;
D O I
10.21565/ozelegitimdergisi.493089
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
This qualitative descriptive study aims to determine the problems in social relations faced by families with special needs regarding their children's impairment, and to examine the ways to cope with these problems. The study was conducted in April 2018, Malatya, Turkey. The study sample included 6 mothers and 4 fathers, and 2 focus group interviews were performed with them. Data were analyzed using descriptive analysis techniques. The themes determined were: (1) Social exclusion and isolation and (2) coping mechanisms. 7 sub-categories were identified under social exclusion and isolation. Some of these categories included lack of social acceptance and support, being perceived as an infectious disease and stigmatization/labeling. Furthermore, 4 sub-categories were identified under coping mechanisms: Establishment of association; socialization with other families who have children with special needs; trying to be invisible in public places and religious values. The families should be supported through multi-faceted social programs to cope with social isolation and exclusion.
引用
收藏
页码:535 / 559
页数:25
相关论文
共 50 条
  • [31] THE DISASTER INFORMATION NEEDS OF FAMILIES OF CHILDREN WITH SPECIAL HEALTHCARE NEEDS: A SCOPING REVIEW
    Hipper, Thomas J.
    Davis, Renee
    Massey, Philip M.
    Turchi, Renee M.
    Lubell, Keri M.
    Pechta, Laura E.
    Rose, Dale A.
    Wolkin, Amy
    Briseno, Lisa
    Franks, Jessica L.
    Chernak, Esther
    HEALTH SECURITY, 2018, 16 (03) : 178 - 192
  • [32] Analysis of Care Coordination Needs for Families of Children with Special Health Care Needs
    Roman, Susan B.
    Dworkin, Paul H.
    Dickinson, Patricia
    Rogers, Steven C.
    JOURNAL OF DEVELOPMENTAL AND BEHAVIORAL PEDIATRICS, 2020, 41 (01): : 58 - 64
  • [33] Family and social influences on children with special needs
    Cebotar, A
    Racu, A
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2000, 44 : 235 - 235
  • [34] Respite Care for Families of Special Needs Children: A Systematic Review
    Julie A. Strunk
    Journal of Developmental and Physical Disabilities, 2010, 22 : 615 - 630
  • [35] Respite Care for Families of Special Needs Children: A Systematic Review
    Strunk, Julie A.
    JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 2010, 22 (06) : 615 - 630
  • [36] Primary Health Care to meet families of children with special needs
    Schuertz, Amanda Louyse
    Mazza, Veronica de Azevedo
    Seidel, Bruna
    Ruthes, Victoria Beatriz Trevisan Nobrega Martins
    Macedo, Laura Christina
    REV RENE, 2020, 21
  • [37] A structural model of family empowerment for families of children with special needs
    Han, Kuem Sun
    Yang, Yunkyung
    Hong, Yeong Seon
    JOURNAL OF CLINICAL NURSING, 2018, 27 (5-6) : E833 - E844
  • [38] Disaster Preparedness in Families With Children With Special Health Care Needs
    Bagwell, Holli B.
    Liggin, Rebecca
    Thompson, Tonya
    Lyle, Kristin
    Anthony, Allison
    Baltz, Matthew
    Melguizo-Castro, Maria
    Nick, Todd
    Kuo, Dennis Z.
    CLINICAL PEDIATRICS, 2016, 55 (11) : 1036 - 1043
  • [39] Disaster Preparedness and Families of Children with Special Needs: A Geographic Comparison
    Baker, Lisa R.
    Cormier, Loretta A.
    JOURNAL OF COMMUNITY HEALTH, 2013, 38 (01) : 106 - 112
  • [40] (In)visibility of children with special health needs and their families in primary care
    Marcon, Sonia Silva
    Dias, Beatriz Caroline
    Neves, Eliane Tatsch
    Marcheti, Maria Angelica
    Garcia de Lima, Regina Aparecida
    REVISTA BRASILEIRA DE ENFERMAGEM, 2020, 73