Cell biological research investigates mechanisms of health and disease, with patients as the initial motivation and ultimate target. While increasingly visible in clinical research, patient participation in cell biological research remains limited. Here we discuss key ethical issues inherent in this development and the value of building trust and trustworthiness.
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Keele Univ, Res Inst Primary Care Hlth Sci, Keele ST5 5BG, Staffs, EnglandKeele Univ, Res Inst Primary Care Hlth Sci, Keele ST5 5BG, Staffs, England
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Harvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Brandeis Univ, Inst Child Youth & Family Policy, Heller Sch Social Policy & Management, 415 South St, Waltham, MA 02453 USAHarvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Rosenfeld, Lindsay E.
LeBlanc, Kimberly
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Harvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USAHarvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
LeBlanc, Kimberly
Nagy, Anna
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Harvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USAHarvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Nagy, Anna
Ego, Braeden K.
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Harvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Stanford Univ, Sch Med, Dept Genet, 291 Campus Dr, Stanford, CA 94305 USAHarvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Ego, Braeden K.
McCray, Alexa T.
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Harvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA
Beth Israel Deaconess Med Ctr, Div Clin Informat, 330 Brookline Ave, Boston, MA 02215 USAHarvard Med Sch, Dept Biomed Informat, 10 Shattuck St, Boston, MA 02115 USA