A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013

被引:17
|
作者
Lindley, Lisa C. [1 ]
Cozad, Melanie J. [2 ]
Svynarenko, Radion [1 ]
Keim-Malpass, Jessica [3 ]
Mack, Jennifer W. [4 ,5 ]
机构
[1] Univ Tennessee, Coll Nursing, 1200 Volunteer Blvd, Knoxville, TN 37996 USA
[2] Univ South Carolina, Dept Hlth Serv Policy &Management, Ctr Effectiveness Res Orthoped, Columbia, SC 29208 USA
[3] Univ Virginia, Sch Nursing, Charlottesville, VA USA
[4] Boston Childrens Hosp, Pediat, Dept Pediat Oncol, Dana Farber Canc Inst, Boston, MA USA
[5] Boston Childrens Hosp, Div Populat Sci, Dana Farber Canc Inst, Boston, MA USA
关键词
concurrent hospice care; end-of-life care; hospice care; Medicaid; pediatric; COMPLEX CHRONIC CONDITIONS; ADOLESCENTS;
D O I
10.1097/NJH.0000000000000738
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
When the 2010 Patient Protection and Affordable Care Act (ACA) was passed, it fundamentally changed end-of-life care for children. Concurrent Care for Children (ACA, section 2302) enables Medicaid/Children's Health Insurance Program children with a prognosis of 6 months to live to use hospice care while continuing treatment for their terminal illness. Although ACA, section 2302, was enacted a decade ago, little is known about these children. The purpose of this study was to generate the first-ever national profile of children enrolled in concurrent hospice care. Using data from multiple sources, including US Medicaid data files from 2011 to 2013, a descriptive analysis of the demographic, community, hospice, and clinical characteristics of children receiving concurrent hospice care was conducted. The analysis revealed that the national sample was extremely medically complex, even for children at end of life. They received care within a complicated system involving primary care providers, hospices, and hospitals. These findings have clinical and care coordination implications for hospice nurses.
引用
收藏
页码:214 / 220
页数:7
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