What are patients' priorities for palliative care research? Focus group study

被引:25
|
作者
Perkins, P.
Barclay, S.
Booth, S.
机构
[1] Moggerhanger & Hinchingbrooke Hosp, Sue Ryder Care St Johns Hospice, Huntingdon, England
[2] Univ Cambridge, Dept Publ Hlth & Primary Care, Cambridge, England
[3] Addenbrookes Hosp, Dept Palliat Med, Cambridge, England
关键词
focus group; palliative; qualitative; research; user involvement;
D O I
10.1177/0269216307077353
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
To elucidate the research priorities of palliative care patients we conducted focus groups with day therapy and hospice in-patients with cancer with an estimated prognosis of 6 months or less. Patients were positive about taking part in this research project identifying five main priorities for future research - talking with patients,- help for patients and families; oncology, symptoms, medication/treatments. Patients gave great emphasis to communication issues and little to symptom control. A patient questionnaire was created with these themes which is currently being used in five hospices across East Anglia. This paper describes the qualitative component of the study.
引用
收藏
页码:219 / 225
页数:7
相关论文
共 50 条
  • [1] What are patients' priorities for palliative care research? a questionnaire study
    Perkins, Paul
    Booth, Sara
    Vowler, Sarah L.
    Barclay, Stephen
    [J]. PALLIATIVE MEDICINE, 2008, 22 (01) : 7 - 12
  • [2] What Are the Priorities in Surgical Palliative Care Research?
    Strong, Erin A.
    Lilley, Elizabeth J.
    [J]. AMERICAN SURGEON, 2023, 89 (05) : 1352 - 1354
  • [3] Research Priorities in Pediatric Palliative Care: a Delphi Study
    Steele, Rose
    Bosma, Harvey
    Johnston, Meaghen Fletcher
    Cadell, Susan
    Davies, Betty
    Siden, Hal
    Straatman, Lynn
    [J]. JOURNAL OF PALLIATIVE CARE, 2008, 24 (04) : 229 - 239
  • [4] Research priorities in pediatric palliative care: a Delphi study
    Johnston, Meaghen Fletcher
    Bosma, Harvey
    Siden, Hal
    Straatman, Lynn
    Fleming, Carly
    Cadell, Susan
    Davies, Betty
    Steele, Rose
    [J]. JOURNAL OF PALLIATIVE CARE, 2007, 23 (03) : 226 - 226
  • [5] Patients' priorities for health research: focus group study of patients with chronic kidney disease
    Tong, Allison
    Sainsbury, Peter
    Carter, Stacy M.
    Hall, Bronwyn
    Harris, David C.
    Walker, Rowan G.
    Hawley, Carmel M.
    Chadban, Steven
    Craig, Jonathan C.
    [J]. NEPHROLOGY DIALYSIS TRANSPLANTATION, 2008, 23 (10) : 3206 - 3214
  • [6] Patient priorities for research: A focus group study of UK medical cannabis patients
    Erridge, Simon
    Olsson, Fabian
    Sodergren, Mikael H.
    [J]. COMPLEMENTARY THERAPIES IN CLINICAL PRACTICE, 2023, 50
  • [7] What are cancer patients' experiences and preferences for the provision of written information in the palliative care setting? A focus group study
    Tomlinson, Kim
    Barker, Stephanie
    Soden, Katie
    [J]. PALLIATIVE MEDICINE, 2012, 26 (05) : 760 - 765
  • [8] Research priorities in veterinary palliative care
    da Costa, J. Maria
    Barroso, Teresa Guerra
    Prata, Joana Correia
    [J]. VETERINARY JOURNAL, 2024, 306
  • [9] Research Priorities in Pediatric Palliative Care
    Baker, Justin N.
    Levine, Deena R.
    Hinds, Pamela S.
    Weaver, Meaghann S.
    Cunningham, Melody J.
    Johnson, Liza
    Anghelescu, Doralina
    Mandrell, Belinda
    Gibson, Deborah V.
    Jones, Barbara
    Wolfe, Joanne
    Feudtner, Chris
    Friebert, Sarah
    Carter, Brian
    Kane, Javier R.
    [J]. JOURNAL OF PEDIATRICS, 2015, 167 (02): : 467 - +
  • [10] Research Focus in Palliative Care
    Mohanti, Bidhu K.
    [J]. INDIAN JOURNAL OF PALLIATIVE CARE, 2011, 17 (04) : 8 - 11