African families' and caregivers' experiences of raising a child with intellectual disability: A narrative synthesis of qualitative studies

被引:12
|
作者
Mkabile, Siyabulela [1 ,2 ]
Garrun, Kathrine L. [1 ]
Shelton, Mary [3 ]
Swartz, Leslie [1 ]
机构
[1] Stellenbosch Univ, Fac Arts & Social Sci, Dept Psychol, Stellenbosch, South Africa
[2] Univ Cape Town, Fac Hlth Sci, Dept Psychiat & Mental Hlth, Cape Town, South Africa
[3] Univ Cape Town, Fac Hlth Sci, Cape Town, South Africa
关键词
intellectual disability; children; families; Africa; caring; experience; culture; services; SOUTH-AFRICA; MOTHERS; FATHERS; PERSPECTIVES; DISORDERS; KNOWLEDGE; SERVICES; BELIEFS; CARERS; ADULTS;
D O I
10.4102/ajod.v10i0.827
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: The prevalence of intellectual disability was high in Africa, particularly amongst low socio-economic communities. Despite this, there was limited literature on primary caregivers and parents of people with intellectual disabilities regarding their experience raising an individual with the condition, especially within the African context. Objectives: The aim of the current systematic review was to investigate experiences of caregivers and parents of children with intellectual disability in Africa. Method: We used strict eligibility criteria to identify suitable studies. We identified Medical Subject Headings (MeSH) terms and other keyword terms and, after conducting searches in electronic databases, identified articles that met the inclusion criteria for articles published between 1975 and the end of 2019. Results: 164 articles were assessed for eligibility. Nine studies met the review's criteria. Six major themes emerged: understanding of intellectual disability (ID), worries about the future, burden of care, lack of services, coping strategies and stigma and discrimination. Conclusion: Caregivers of children with intellectual disability in Africa faced substantial challenges. Current findings suggested that there was the need for both formal and alternative healthcare workers to work together towards an understanding and management of intellectual disability in Africa.
引用
收藏
页数:10
相关论文
共 50 条
  • [21] Covid 19 Pandemic Experiences Among Caregivers of Persons with Intellectual Disability
    Bhaumik, Mousumi
    Kapil, Yashvinder
    Narayan, Jayanthi
    JOURNAL OF INTELLECTUAL DISABILITIES, 2024, 28 (01) : 157 - 169
  • [22] Poverty transitions among families supporting a child with intellectual disability
    Emerson, Eric
    Shahtahmasebi, Said
    Lancaster, Gillian
    Berridge, Damon
    JOURNAL OF INTELLECTUAL & DEVELOPMENTAL DISABILITY, 2010, 35 (04): : 224 - 234
  • [23] The life situation of families with a child with intellectual disability (ID) in Sweden
    Olsson, MB
    Hwang, CP
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2004, 48 : 368 - 368
  • [24] The experiences of caregivers of children with epilepsy: A meta-synthesis of qualitative research studies
    Yu, Zhichao
    Shao, Qinwen
    Hou, Kunhua
    Wang, Yanjie
    Sun, Xianghong
    FRONTIERS IN PSYCHIATRY, 2022, 13
  • [25] Life Experiences of Mothers of Children with an Intellectual Disability: A Qualitative Study
    Budak, Merve Inan
    Kucuk, Leyla
    Civelek, Hatice Yaprak
    JOURNAL OF MENTAL HEALTH RESEARCH IN INTELLECTUAL DISABILITIES, 2018, 11 (04) : 301 - 321
  • [26] Caregivers' experiences of interaction with families expecting a fetally impaired child
    Maijala, H
    Paavilainen, E
    Väisänen, L
    Åstedt-Kurki, P
    JOURNAL OF CLINICAL NURSING, 2004, 13 (03) : 376 - 385
  • [27] Families' experiences of child and adolescent brain tumor: A systematic review and synthesis of qualitative research
    Young, Kate
    Bowers, Alison
    Bradford, Natalie
    PSYCHO-ONCOLOGY, 2021, 30 (10) : 1643 - 1662
  • [28] Experiences of abortion: A narrative review of qualitative studies
    Lie, Mabel L. S.
    Robson, Stephen C.
    May, Carl R.
    BMC HEALTH SERVICES RESEARCH, 2008, 8 (1)
  • [29] Experiences of abortion: A narrative review of qualitative studies
    Mabel LS Lie
    Stephen C Robson
    Carl R May
    BMC Health Services Research, 8
  • [30] Intellectual disability, art and identity: a qualitative exploration of the experiences of professional artists with intellectual disabilities
    Stober, Kaitlin
    Iriarte, Edurne Garcia
    DISABILITY & SOCIETY, 2023, 38 (10) : 1871 - 1894