Can genomics tell me who I am? Essentialistic rhetoric in direct-to-consumer DNA testing

被引:61
|
作者
Nordgren, A. [1 ]
Juengst, E. T. [2 ]
机构
[1] Linkoping Univ, Ctr Appl Eth, Linkoping, Sweden
[2] Case Western Reserve Univ, Dept Bioeth, Cleveland, OH 44106 USA
基金
美国国家卫生研究院;
关键词
consumer genomics; identity; essentialism; RISK; SERVICES; GENETICS; IDENTITY;
D O I
10.1080/14636770902901595
中图分类号
Q81 [生物工程学(生物技术)]; Q93 [微生物学];
学科分类号
071005 ; 0836 ; 090102 ; 100705 ;
摘要
Recently, a high number of companies have emerged that offer online direct-to-consumer DNA testing. We investigate these consumer genomics companies through the lens of identity. We find that many of them appeal to a kind of ogenetic essentialismo. We suggest that this appeal is key to understanding why consumers are attracted to their services. There seem to be three very different currents within contemporary culture at work: the pre-modern search for a naturalistic understanding of identity, the modern enthusiasm for science, and the post-modern emphasis on radical individual self-determination. The support for our hypothesis comes from the companies' websites and the online testimonials of satisfied customers. We discuss the risk of distortion of the subjective experience of identity due to unreliable or uninformative test results, inadequate or misleading explanation, and the fact that the science is still too weak to yield meaningful results.
引用
收藏
页码:157 / 172
页数:16
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