The purpose of this article was to explore the psychosocial implications of being diagnosed with a high-grade glioma, World Health Organization III/IV and IV/IV, to better inform healthcare providers and researchers of the patient experience. The information is the cumulative data collected from hundreds of patient interviews in a large metropolitan brain tumor clinic over a 7-year period. Three themes of loss emerged-loss of independence, loss of self, and loss of relationships. This information is presented on behalf of the patients for acknowledgement of their experience and for identification of the need for increased psychological and concrete services to better serve this population.
机构:
Daekin Univ, Geelong Hosp, Andrew Love Canc Ctr, Sch Med, Geelong, Vic 3220, AustraliaMem Sloan Kettering Canc Ctr, Dept Neurol, New York, NY 10065 USA
Khasraw, Mustafa
Simeonovic, Marcelle
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Univ Melbourne, Royal Melbourne Hosp, Melbourne, Vic 3050, AustraliaMem Sloan Kettering Canc Ctr, Dept Neurol, New York, NY 10065 USA
Simeonovic, Marcelle
Grommes, Christian
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Mem Sloan Kettering Canc Ctr, Dept Neurol, New York, NY 10065 USAMem Sloan Kettering Canc Ctr, Dept Neurol, New York, NY 10065 USA
机构:
Univ Western Ontario, Dept Oncol, London Reg Canc Ctr, London, ON N6A 5B9, CanadaUniv Western Ontario, Dept Oncol, London Reg Canc Ctr, London, ON N6A 5B9, Canada