Unmet needs in adolescents and young adults with cancer: A mixed-method study using social media

被引:10
|
作者
Choi, Eunju [1 ]
Becker, Heather [2 ]
Kim, Soojeong [2 ]
机构
[1] Univ Texas MD Anderson Canc Ctr, Dept Nursing, 1515 Holcombe Blvd, Houston, TX 77030 USA
[2] Univ Texas Austin, Sch Nursing, 1710 Red River St, Austin, TX 78712 USA
关键词
Adolescent and young adult with cancer; Unmet needs; Social media; Survivorship; Mixed methods study; QUALITY-OF-LIFE; SUPPORTIVE CARE; BODY-IMAGE; SURVIVORS; SUICIDE; GENDER; IMPACT; SPIRITUALITY; PREVALENCE; INTERVIEWS;
D O I
10.1016/j.pedn.2022.01.019
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Purpose: The purpose of this study is to identify and compare the unmet needs of adolescents and young adults (AYAs) with cancer by age and gender.Design and methods: This is a mixed-methods study to analyze textual data from blog posts on AYAs' unmet needs. Themes were identified using a qualitative descriptive method with content analysis, and a quantitative method was used to compare themes by age and gender.Results: The findings from blog posts of 100 AYAs showed that AYAs with cancer expressed somewhat different needs by age and gender. Young adults (26-39 years) with cancer tended to describe significantly more feelings of fear (p = .043) and parenting needs (p < .001) and significantly fewer educational needs (p < .001) than did emerging adults (18-25 years) with cancer. Female AYAs with cancer described significantly more feelings of guilt (p = .020), sexual needs (p = .003), fertility issues (p = .023), and social needs (p = .013) than did male AYAs with cancer. There were no statistically significant differences in the remaining themes between age and gender groups, although how they described unmet needs differed qualitatively.Conclusions: AYAs with cancer have various unmet needs and their unmet needs were different by age and gender. Practice implications: Nurses should proactively provide integrated systematic screening by offering a safe, non-judgmental environment to encourage AYAs to express their needs across their cancer journey. Nurses also should respond with developmentally appropriate support, resources, and referrals based on these expressed needs.(c) 2022 Elsevier Inc. All rights reserved.
引用
收藏
页码:31 / 41
页数:11
相关论文
共 50 条
  • [31] Care Needs of Adolescents and Young Adults with Cancer Undergoing Active Treatment in South Korea: A Mixed Methods Study
    Park, Mina
    Kwon, Seung Yeon
    Yun, Hyeseon
    Lyu, Chuhl Joo
    Han, Jung Woo
    Hahn, Seung Min
    Jung, Minkyu
    Rha, Sun Young
    Beom, Seung-Hoon
    Lee, Choong-Kun
    Jang, Hyeju
    JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2023, 12 (03) : 398 - 407
  • [32] Assessing unmet needs and distress in adolescents and young adults who have a parent or sibling die from cancer
    McDonald, Fiona
    Patterson, Pandora
    Costa, Dan
    PSYCHO-ONCOLOGY, 2016, 25 (SP. S3) : 137 - 138
  • [33] Exposing the Risks of Social Media Recruitment in Adolescents and Young Adults with Cancer: #Beware
    Bell, Cynthia J.
    Spruit, Jessica L.
    Kavanaugh, Karen L.
    JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2020, 9 (05) : 601 - 607
  • [34] Living in an online world: Social media experiences of adolescents and young adults with cancer
    Reuman, Hannah
    Kerr, Katherine
    Sidani, Jaime
    Felker, James
    Escobar-Viera, Cesar
    Shensa, Ariel
    Maurer, Scott H.
    PEDIATRIC BLOOD & CANCER, 2022, 69 (06)
  • [35] Using social media for support among young adults with cancer
    Lazard, Allison J.
    Collins, Meredith
    Hedrick, Ashley
    Varma, Tushar
    Love, Brad
    Valle, Carmina G.
    Brooks, Erik
    Benedict, Catherine
    PSYCHO-ONCOLOGY, 2021, 30 : 86 - 87
  • [36] Identifying and Meeting the Needs of Adolescents and Young Adults with Cancer
    Zhaohui Jin
    Melody A. Griffith
    Allison C. Rosenthal
    Current Oncology Reports, 2021, 23
  • [37] Identifying and Meeting the Needs of Adolescents and Young Adults with Cancer
    Jin, Zhaohui
    Griffith, Melody A.
    Rosenthal, Allison C.
    CURRENT ONCOLOGY REPORTS, 2021, 23 (02)
  • [38] Met and unmet needs of homeless individuals at different stages of housing reintegration: A mixed-method investigation
    Fleury, Marie-Josee
    Grenier, Guy
    Sabetti, Judith
    Bertrand, Karine
    Clement, Michele
    Brochu, Serge
    PLOS ONE, 2021, 16 (01):
  • [39] Adolescents and Young Adults Knowledge, Adherence and Experiences While on Antiretroviral Therapy in a Tertiary Hospital in Lagos, Nigeria: A Mixed-Method Study
    Aderemi-Williams, Roseline Iberi
    Razaq, Ayomikun Rofiat
    Abah, Isaac Okoh
    Opanuga, Olabisi Oluranti
    Akanmu, Alani Sulaimon
    JOURNAL OF THE INTERNATIONAL ASSOCIATION OF PROVIDERS OF AIDS CARE, 2021, 20
  • [40] Unmet support service needs and health-related quality of life among adolescents and young adults with cancer: the AYA HOPE study
    Smith, Ashley Wilder
    Parsons, Helen M.
    Kent, Erin E.
    Bellizzi, Keith
    Zebrack, Brad J.
    Keel, Gretchen
    Lynch, Charles F.
    Rubenstein, Mara B.
    Keegan, Theresa H. M.
    FRONTIERS IN ONCOLOGY, 2013, 3