High risk pregnancies;
narration;
narrative medicine;
pregnancy after liver transplantation;
story-based medicine;
transplant patient;
OUTCOMES;
D O I:
10.3109/14767058.2014.906578
中图分类号:
R71 [妇产科学];
学科分类号:
100211 ;
摘要:
Narrative medicine allows professionals from all fields of medical sciences to understand the patient's total experience of illness, and meet his/her needs in an empathetic environment. Narrative medicine helps spread holistic knowledge of a multitude of complex clinical conditions, including transplantation. Objective: To underline the role of narrative medicine in women who become pregnant after a liver transplant by using their narrations of this very special experience. Methods: We describe our study with narration and listening to the stories of three women expecting their first child after a liver transplant, by analysing the structure and role of narration in the context of relationships between patients and caregivers. The narrations were transcribed verbatim with the main plot analysed in order to address all the aspects of this rare clinical condition and the transition to parenthood. Results: The women narrated this experience in three phases: transplantation, pregnancy and delivery, and post-partum. They described all phases of pregnancy as stressful but satisfying, whereas the fact of becoming a mother was perceived as a victory both as a woman and as a transplant patient. Conclusions: Our results suggest that narrative medicine represents a significant professional tool for caring for transplant patients during pregnancy.
机构:
Penn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USAPenn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USA
Sharma, Sonal
Sonny, Abraham
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机构:
Harvard Med Sch, Dept Anesthesia Crit Care & Pain Med, Massachusetts Gen Hosp, Boston, MA 02115 USAPenn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USA
Sonny, Abraham
Dalia, Adam A.
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机构:
Harvard Med Sch, Dept Anesthesia Crit Care & Pain Med, Massachusetts Gen Hosp, Boston, MA 02115 USAPenn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USA
Dalia, Adam A.
Karamchandani, Kunal
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机构:
Penn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USAPenn State Coll Med, Dept Anesthesiol & Perioperat Med, Penn State Hlth Milton S Hershey Med Ctr, 500 Univ Dr, Hershey, PA 17033 USA
机构:
Catholic Med Ctr, Dept Hosp Med, Manchester, NH 03103 USACatholic Med Ctr, Dept Hosp Med, Manchester, NH 03103 USA
Dokmak, Amr
Trivedi, Hirsh D.
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机构:
Harvard Med Sch, Beth Israel Deaconess Med Ctr, Dept Gastroenterol, Boston, MA 02115 USACatholic Med Ctr, Dept Hosp Med, Manchester, NH 03103 USA
Trivedi, Hirsh D.
Bonder, Alan
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机构:
Harvard Med Sch, Beth Israel Deaconess Med Ctr, Liver Ctr, Dept Gastroenterol, Boston, MA 02115 USACatholic Med Ctr, Dept Hosp Med, Manchester, NH 03103 USA
Bonder, Alan
Wolf, Jacqueline
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机构:
Harvard Med Sch, Beth Israel Deaconess Med Ctr, Dept Gastroenterol, Boston, MA 02115 USACatholic Med Ctr, Dept Hosp Med, Manchester, NH 03103 USA