Experience of family function, family involvement, and self-management in adult patients with type 2 diabetes: A thematic analysis

被引:17
|
作者
Bennich, Birgitte B. [1 ,2 ]
Munch, Lene [1 ]
Overgaard, Dorthe [2 ]
Konradsen, Hanne [3 ,5 ,10 ]
Knop, Filip K. [1 ,4 ,5 ,9 ]
Roder, Michael [1 ,6 ]
Vilsboll, Tina [1 ,5 ]
Egerod, Ingrid [7 ,8 ]
机构
[1] Gentofte Univ Hosp, Copenhagen Univ Hosp, Steno Diabet Ctr Copenhagen, Clin Metab Physiol, Kildegardsvej 28, DK-2900 Hellerup, Denmark
[2] Univ Coll Copenhagen, Inst Nursing, Copenhagen N, Denmark
[3] NVS, Dept Neurobiol Care Sci & Soc, Huddinge, Sweden
[4] Univ Copenhagen, Fac Hlth & Med Sci, Novo Nordisk Fdn Ctr Basic Metab Res, Copenhagen, Denmark
[5] Univ Copenhagen, Dept Clin Med, Fac Hlth & Med Sci, Copenhagen, Denmark
[6] Odense Univ Hosp, Steno Diabet Ctr Odense, Odense C, Denmark
[7] Rigshosp, Copenhagen Univ Hosp, Intens Care Unit, Copenhagen, Denmark
[8] Univ Copenhagen, Fac Hlth & Med Sci, Copenhagen N, Denmark
[9] Univ Copenhagen, Gentofte Hosp, Ctr Clin Metab Res, Dept Med, Hellerup, Denmark
[10] Herlev & Gentofte Univ Hosp, Dept Gastroenterol, Herlev, Denmark
关键词
beliefs; diabetes type 2; family function; glycaemic control; HbA1c; lifestyle; nursing; patient; qualitative; self-management; COMMON-SENSE MODEL; GLYCEMIC CONTROL; ILLNESS BELIEFS; CARE BEHAVIORS; ADHERENCE; INTERVENTIONS; PERCEPTIONS; MEDICATION; METAANALYSIS; DISTRESS;
D O I
10.1111/jan.14256
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Aim To describe the patient's experience of family function and its importance in diabetes-related self-management. Background Many patients fail to reach the targeted glycemic level due to low self-management adherence. Knowledge is needed regarding the impact of family function on diabetes self-management. Design A qualitative descriptive design. Methods A purposive sample of 20 patients with type 2 diabetes. Data were collected in March-June 2017 via audio-recorded semi-structured interviews, field notes and Eco-maps. Analysed using thematic framework matrix and thematic analysis. Results Four themes were identified: (1) Downplaying disease. The disease was trivialized creating a barrier to family involvement; (2) Second guessing. When diabetes was not discussed, patient and family made their own assumptions; (3) Going it alone. The participants preferred sole disease responsibility to maintain usual family life; (4) No regrets. The participants managed their disease with medications only to maintain family cohesion and 'the good life'. Conclusion The participants in our study downplayed the consequences of type 2 diabetes and chose to control their disease medically rather than by lifestyle changes. They renounced family involvement to maintain their lifestyle and promote family cohesion. Impact During clinical check-ups, patients should be encouraged to involve their family in lifestyle changes. Healthcare professionals need to recognize illness- and treatment beliefs and the impact of family function in disease management.
引用
收藏
页码:621 / 631
页数:11
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