The experiences, motivations and expectations of participants in a research project implementing genomics as a paediatric diagnostic service in Wales

被引：0
|
作者：
Juma, G. A. Pinto [1 ]
Doheny, S. [1 ]
Tully, I. [1 ,2 ,3 ]
Clarke, A. J. [1 ,2 ]
Butler, R. [2 ]
机构：
[1] Cardiff Univ, Inst Med Genet, Sch Med, Cardiff, S Glam, Wales
[2] Univ Hosp Wales, All Wales Med Genet Serv, Cardiff, S Glam, Wales
[3] Cardiff Univ, NMHRI, Cardiff, S Glam, Wales
来源：
EUROPEAN JOURNAL OF HUMAN GENETICS | 2019年 / 27卷
关键词：
D O I：
暂无
中图分类号：
Q5 [生物化学]; Q7 [分子生物学];
学科分类号：
071010 ; 081704 ;
摘要：
EMP1.36D
引用
收藏
页码：726 / 727
页数：2
相关论文
共 23 条
  • [21] Using service user feedback to make a research project suitable and acceptable for participants-WOMB: Wearable device to observe movements of your baby study
    Dunkerton, Suzanna
    Breslin, Eamonn
    Kunovski, Phil
    Brocklesby, Jeremy
    BJOG-AN INTERNATIONAL JOURNAL OF OBSTETRICS AND GYNAECOLOGY, 2023, 130 : 105 - 105
  • [22] Patient Survey Evaluating the Experiences of Patients who Participated in at least one Telephone or Virtual Appointment for Pre-Symptomatic Testing for Huntington's disease in the All Wales Medical Genomics Service
    Duffin, Donna
    Clarke, Angus
    Evans, Karenze
    Murch, Oliver
    Murray, Alexandra
    Tully, Ian
    Jain, Vani
    EUROPEAN JOURNAL OF HUMAN GENETICS, 2022, 30 (SUPPL 1) : 282 - 282
  • [23] Eskasoni First Nation's transformation of youth mental healthcare: Partnership between a Mi'kmaq community and the ACCESS Open Minds research project in implementing innovative practice and service evaluation
    Hutt-MacLeod, Daphne
    Rudderham, Heather
    Sylliboy, Arnold
    Sylliboy-Denny, Mallery
    Liebenberg, Linda
    Denny, Jeannine F.
    Gould, Matthew R.
    Gould, Norma
    Nossal, Margot
    Iyer, Srividya N.
    Malla, Ashok
    Boksa, Patricia
    EARLY INTERVENTION IN PSYCHIATRY, 2019, 13 : 42 - 47
123