Factors associated with the quality of life of family carers of people with dementia: A systematic review

被引:215
|
作者
Farina, Nicolas [1 ]
Page, Thomas E. [2 ]
Daley, Stephanie [1 ]
Brown, Anna [2 ]
Bowling, Ann [3 ]
Basset, Thurstine [4 ]
Livingston, Gill [5 ]
Knapp, Martin [6 ]
Murray, Joanna [7 ]
Banerjee, Sube [1 ]
机构
[1] Brighton & Sussex Med Sch, Ctr Dementia Studies, Brighton, E Sussex, England
[2] Univ Kent, Sch Psychol, Canterbury, Kent, England
[3] Univ Southampton, Hlth Sci, Southampton, Hants, England
[4] Sussex Partnership NHS Fdn Trust, Lived Experience Advisory Panel, Hove, England
[5] UCL, Div Psychiat, London, England
[6] London Sch Econ, Dept Social Policy, London, England
[7] Kings Coll London, Inst Psychiat Psychol & Neurosci, London, England
关键词
Quality of life; Family carers; Family caregivers; Informal carers; Dementia; Measurement Alzheimer's disease; Systematic review; ALZHEIMERS-DISEASE; INFORMAL CAREGIVERS; SELF-EFFICACY; SLEEP QUALITY; HEALTH; BURDEN; IMPACT; OUTCOMES; SPOUSES; COSTS;
D O I
10.1016/j.jalz.2016.12.010
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Introduction: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. Methods: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. Results: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. Discussion: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it. (C) 2017 The Authors. Published by Elsevier Inc. on behalf of the Alzheimer's Association.
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页码:572 / 581
页数:10
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