Factors associated with the quality of life of family carers of people with dementia: A systematic review

被引:215
|
作者
Farina, Nicolas [1 ]
Page, Thomas E. [2 ]
Daley, Stephanie [1 ]
Brown, Anna [2 ]
Bowling, Ann [3 ]
Basset, Thurstine [4 ]
Livingston, Gill [5 ]
Knapp, Martin [6 ]
Murray, Joanna [7 ]
Banerjee, Sube [1 ]
机构
[1] Brighton & Sussex Med Sch, Ctr Dementia Studies, Brighton, E Sussex, England
[2] Univ Kent, Sch Psychol, Canterbury, Kent, England
[3] Univ Southampton, Hlth Sci, Southampton, Hants, England
[4] Sussex Partnership NHS Fdn Trust, Lived Experience Advisory Panel, Hove, England
[5] UCL, Div Psychiat, London, England
[6] London Sch Econ, Dept Social Policy, London, England
[7] Kings Coll London, Inst Psychiat Psychol & Neurosci, London, England
关键词
Quality of life; Family carers; Family caregivers; Informal carers; Dementia; Measurement Alzheimer's disease; Systematic review; ALZHEIMERS-DISEASE; INFORMAL CAREGIVERS; SELF-EFFICACY; SLEEP QUALITY; HEALTH; BURDEN; IMPACT; OUTCOMES; SPOUSES; COSTS;
D O I
10.1016/j.jalz.2016.12.010
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Introduction: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. Methods: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. Results: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. Discussion: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it. (C) 2017 The Authors. Published by Elsevier Inc. on behalf of the Alzheimer's Association.
引用
收藏
页码:572 / 581
页数:10
相关论文
共 50 条
  • [1] The Quality of Life of People with Dementia and Their Family Carers
    Bruvik, Froydis Kristine
    Ulstein, Ingun Dina
    Ranhoff, Anette Hylen
    Engedal, Knut
    [J]. DEMENTIA AND GERIATRIC COGNITIVE DISORDERS, 2012, 34 (01) : 7 - 14
  • [2] Quality of life of family carers of people living with dementia: review of systematic reviews of observational and intervention studies
    Oliveira, Deborah
    da Mata, Fabiana Araujo Figueiredo
    Aubeeluck, Aimee
    [J]. BRITISH MEDICAL BULLETIN, 2024, 149 (01) : 1 - 12
  • [3] Self-efficacy and health-related quality of life in family carers of people with dementia: a systematic review
    Crellin, Nadia E.
    Orrell, Martin
    McDermott, Orii
    Charlesworth, Georgina
    [J]. AGING & MENTAL HEALTH, 2014, 18 (08) : 954 - 969
  • [4] Factors predicting quality of life in family carers of people with dementia: The role of psychological inflexibility
    Contreras, Milena
    Mioshi, Eneida
    Kishita, Naoko
    [J]. JOURNAL OF CONTEXTUAL BEHAVIORAL SCIENCE, 2021, 22 : 7 - 12
  • [5] Factors affecting the quality of life of family carers of people with dementia: the role of carer anxiety
    Contreras, Milena
    Khondoker, Mizanur
    Mioshi, Eneida
    Kishita, Naoko
    [J]. PSYCHOLOGY HEALTH & MEDICINE, 2023, 28 (04) : 843 - 853
  • [6] Factors Related to the Quality of Life in Family Carers of People With Dementia: A Meta-Analysis
    Contreras, Milena L.
    Mioshi, Eneida
    Kishita, Naoko
    [J]. JOURNAL OF GERIATRIC PSYCHIATRY AND NEUROLOGY, 2021, 34 (05) : 482 - 500
  • [7] Quality of Life on the Views of Older Family Carers of People with Dementia
    Oliveira, Deborah
    Vass, Catherine
    Aubeeluck, Aimee
    [J]. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2019, 18 (03): : 990 - 1009
  • [8] Grief in family carers of people living with dementia: A systematic review
    Crawley, Sophie
    Sampson, Elizabeth L.
    Moore, Kirsten J.
    Kupeli, Nuriye
    West, Emily
    [J]. INTERNATIONAL PSYCHOGERIATRICS, 2023, 35 (09) : 477 - 508
  • [9] Factors associated with quality of life of people with dementia in long-term care facilities: A systematic review
    Beerens, Hanneke C.
    Zwakhalen, Sandra M. G.
    Verbeek, Hilde
    Ruwaard, Dirk
    Hamers, Jan P. H.
    [J]. INTERNATIONAL JOURNAL OF NURSING STUDIES, 2013, 50 (09) : 1259 - 1270
  • [10] Factors Associated with the Quality of Life of People with Dementia and with Quality of Life-Improving Interventions: Scoping Review
    Holopainen, Arja
    Siltanen, Hannele
    Pohjanvuori, Anita
    Makisalo-Ropponen, Merja
    Okkonen, Eila
    [J]. DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2019, 18 (04): : 1507 - 1537