THE USE OF A PATIENT REGISTRY TO BETTER INFORM HEALTHCARE DECISION MAKERS AND IMPROVE CLINICAL OUTCOMES FOR PATIENTS WITH PHENYLKETONURIA (PKU)

被引：0
|
作者：
Blakely, E. [1 ]
Brown, C. [1 ]
Bodamer, O. [2 ]
Levy, H. [2 ]
Feldman, H. [1 ]
Connolly, R. [1 ]
Moseley, K. [3 ]
Boulanger, V [4 ]
Seebald, A. [4 ]
Rossov, S. [4 ]
Milligan, K. [5 ]
Radtchenko, J. [6 ]
机构：
[1] NPKUA, Eau Claire, WI USA
[2] Boston Childrens Hosp, Boston, MA USA
[3] Univ Southern Calif, Los Angeles, CA USA
[4] NORD, Danbury, CT USA
[5] Trio Hlth, La Jolla, CA USA
[6] Trio Hlth Analyt, La Jolla, CA USA
来源：
VALUE IN HEALTH | 2019年 / 22卷
关键词：
D O I：
10.1016/j.jval.2019.04.1701
中图分类号：
F [经济];
学科分类号：
02 ;
摘要：
PRO68
引用
收藏
页码：S348 / S348
页数：1
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