Pediatric Palliative Care for Children with Complex Chronic Medical Conditions

被引:36
|
作者
Schwantes, Scott [1 ]
O'Brien, Helen Wells [1 ]
机构
[1] Gillette Childrens Specialty Healthcare, Reg Hosp, Dept Pediat, St Paul, MN 55101 USA
关键词
Children with complex chronic conditions; Dysautonomia; Neuroirritability; Feeding intolerance; Spiritual care; FORGOING ARTIFICIAL NUTRITION; BOTULINUM-TOXIN-A; CEREBRAL-PALSY; PROVIDING CARE; OF-LIFE; SLEEP; PAIN; GABAPENTIN; HYDRATION; END;
D O I
10.1016/j.pcl.2014.04.011
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
Children with complex chronic medical conditions are at risk for significant distress during multiple points in their life. Pediatric palliative care can meaningfully assist in providing support to the child and family throughout their complex care, managing distressing symptoms, anticipating future decision points, and helping the child and family to thrive in their local community.
引用
收藏
页码:797 / 821
页数:25
相关论文
共 50 条
  • [21] The prescribed pediatric center: A medical day treatment program for children with complex medical conditions
    Ruppert, ES
    Karst, TO
    Brogan, MG
    [J]. INFANTS & YOUNG CHILDREN, 1998, 10 (03): : 19 - 31
  • [22] Complex Chronic Illness in Palliative Care: Pediatric Case Study Involving the Interdisciplinary Team
    Chrastek, Jody
    Remke, Stacy S.
    Osenga, Kaci L.
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2011, 41 (01) : 178 - 178
  • [23] Mental Health Conditions and Health Care Payments for Children with Chronic Medical Conditions
    Perrin, James M.
    Asarnow, Joan Rosenbaum
    Stancin, Terry
    Melek, Stephen P.
    Fritz, Gregory K.
    [J]. ACADEMIC PEDIATRICS, 2019, 19 (01) : 44 - 50
  • [24] Caregiver Voices: Coordinating Care for Children With Complex Chronic Conditions
    Golden, Shannon L.
    Nageswaran, Savithri
    [J]. CLINICAL PEDIATRICS, 2012, 51 (08) : 723 - 729
  • [25] Bilateral Renal Agenesis: Redefining Pediatric Palliative Care Across an Innovative Complex Chronic Care Continuum
    Collura, Christopher A.
    Boss, Renee
    Thorvilson, Megan
    Schiltz, Brenda M.
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2020, 59 (02) : 416 - 416
  • [26] Palliative Care Needs Assessment for Pediatric Complex Care Providers
    DiDomizio, P. Galen
    Millar, Morgan M.
    Olson, Lenora
    Murphy, Nancy
    Moore, Dominic
    [J]. JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2023, 65 (02) : 73 - 80
  • [27] Comparing Resource Use in Medical Admissions of Children With Complex Chronic Conditions
    Silber, Jeffrey H.
    Rosenbaum, Paul R.
    Pimentel, Samuel D.
    Calhoun, Shawna
    Wang, Wei
    Sharpe, James E.
    Reiter, Joseph G.
    Shah, Shivani A.
    Hochman, Lauren L.
    Even-Shoshan, Orit
    [J]. MEDICAL CARE, 2019, 57 (08) : 615 - 624
  • [28] Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis
    Mack, JW
    Wolfe, J
    [J]. CURRENT OPINION IN PEDIATRICS, 2006, 18 (01) : 10 - 14
  • [29] Quality of life - Evaluation criteria for children with chronic conditions in medical care
    Bullinger M.
    Schmidt S.
    Petersen C.
    Ravens-Sieberer U.
    [J]. Journal of Public Health, 2006, 14 (6) : 343 - 355
  • [30] Polypharmacy in Children with Medical Complexity: A Cross-Sectional Study in a Pediatric Palliative Care Center
    Zanin, Anna
    Baratiri, Fernando
    Roverato, Barbara
    Mengato, Daniele
    Pivato, Lisa
    Avagnina, Irene
    Maghini, Irene
    Divisic, Antuan
    Rusalen, Francesca
    Agosto, Caterina
    Venturini, Francesca
    Benini, Franca
    [J]. CHILDREN-BASEL, 2024, 11 (07):