Perception of risk and shared decision making process in multiple sclerosis

被引:14
|
作者
Cocco, Eleonora [1 ]
Caoci, Alberto [1 ]
Lorefice, Lorena [2 ]
Marrosu, Maria Giovanna [2 ]
机构
[1] Univ Cagliari, Dept Publ Hlth Clin & Mol Med, Cagliari, Italy
[2] Univ Cagliari, Dept Med Sci, Cagliari, Italy
关键词
Multiple sclerosis; perception of risk; participation preference; share decision-making; empowerment; engagement; illness; disability; therapy; RANDOMIZED-CONTROLLED-TRIAL; PATIENT INFORMATION; PROGNOSTIC RISK; HEALTH-CARE; PREFERENCES; MITOXANTRONE; NATALIZUMAB; THERAPIES; MEDICINE; STRATIFICATION;
D O I
10.1080/14737175.2016.1217155
中图分类号
R74 [神经病学与精神病学];
学科分类号
摘要
Introduction: Multiple sclerosis (MS) treatment has changed considerably in recent years thanks to the introduction of ever-more-powerful drugs. Unfortunately, the higher efficacies of these therapies are associated with increased risks of severe adverse events. In this scenario, neurologists and persons with MS (pwMSs) must now balance benefits and risks when making decisions regarding MS management.Areas covered: This review highlights the importance of the risk perception of pwMSs and their neurologists in the shared decision-making process in MS management, taking into account different ways improve the empowerment and engagement of pwMSs.Expert commentary: The shared decision-making process in MS is strongly influenced by an individual's risk perception, which is dynamic and influenced by the personal, emotional, social, and experiential factors of both the pwMSs and neurologists.
引用
收藏
页码:173 / 180
页数:8
相关论文
共 50 条
  • [21] Insights for Healthcare Providers on Shared Decision-Making in Multiple Sclerosis: A Narrative Review
    Sharon Stoll
    Kathleen Costello
    Scott D. Newsome
    Hollie Schmidt
    Amy B. Sullivan
    Barry Hendin
    [J]. Neurology and Therapy, 2024, 13 : 21 - 37
  • [22] Shared Decision-Making and MRI in Multiple Sclerosis: Patient Experience, Gaps and Opportunities
    Shirani, A.
    Zabad, R.
    Solomon, A.
    Salter, A.
    Munoz, S.
    Estabrooks, P.
    Cross, A. H.
    [J]. MULTIPLE SCLEROSIS JOURNAL, 2021, 27 (1_SUPPL) : 95 - 96
  • [23] Steroid treatment for relapses in multiple sclerosis -: the evidence urges shared decision-making
    Köpke, S
    Heesen, C
    Kasper, J
    Mühlhauser, I
    [J]. ACTA NEUROLOGICA SCANDINAVICA, 2004, 110 (01): : 1 - 5
  • [24] Insights for Healthcare Providers on Shared Decision-Making in Multiple Sclerosis: A Narrative Review
    Stoll, Sharon
    Costello, Kathleen
    Newsome, Scott D.
    Schmidt, Hollie
    Sullivan, Amy B.
    Hendin, Barry
    [J]. NEUROLOGY AND THERAPY, 2024, 13 (01) : 21 - 37
  • [25] An agent-based simulation model for informed shared decision making in multiple sclerosis
    Veloso, Mario
    [J]. MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2013, 2 (04) : 377 - 384
  • [26] Implementing Shared Decision-Making for Multiple Sclerosis: The MS-SUPPORT Tool
    Col, Nananda F.
    Solomon, Andrew J.
    Alvarez, Enrique
    Pbert, Lori
    Ionete, Carolina
    BerriosMorales, Idanis
    Chester, Jennifer
    Kutz, Christen
    Iwuchukwu, Crystal
    Livingston, Terrie
    Springmann, Vicky
    Col, Hannah, V
    Ngo, Long H.
    [J]. MULTIPLE SCLEROSIS AND RELATED DISORDERS, 2023, 80
  • [27] Shared decision-making in multiple sclerosis physical symptomatic care: a systematic review
    Ben-Zacharia, Aliza Bitton
    Lee, Jong-Mi
    Kahle, Jennifer S. S.
    Lord, Bonnie
    [J]. THERAPEUTIC ADVANCES IN CHRONIC DISEASE, 2023, 14
  • [28] Shared decision making, decision aids, and risk communication
    Helfand, Mark
    [J]. MEDICAL DECISION MAKING, 2007, 27 (05) : 516 - 517
  • [29] Shared Decision Making A Recovery Cultural Process
    Warren, Barbara Jones
    [J]. JOURNAL OF PSYCHOSOCIAL NURSING AND MENTAL HEALTH SERVICES, 2012, 50 (12) : 4 - 5
  • [30] PRINCIPAL IN PROCESS OF SHARED DECISION-MAKING
    PLOUGH, AL
    [J]. AMERICAN JOURNAL OF ORTHOPSYCHIATRY, 1973, 43 (02) : 202 - 202