Translational Research - Caregiving Challenges for Parents of Children With Rare Chronic Conditions Due to Genetic Disorders

被引：0
|
作者：
Christian, Becky J. [1 ]
机构：
[1] Univ Louisville, Sch Nursing, Louisville, KY 40292 USA
来源：
JOURNAL OF PEDIATRIC NURSING-NURSING CARE OF CHILDREN & FAMILIES | 2016年 / 31卷 / 01期
关键词：
HEALTH; PARTNERSHIPS; DISEASE; FAMILY;
D O I：
10.1016/j.pedn.2015.11.015
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
[No abstract available]
引用
收藏
页码：99 / 101
页数：3
相关论文
共 50 条
  • [21] Arranging for Alternative Caregivers: Challenges to Safe Care for Parents of Children With Disabilities and Chronic Conditions
    Olsen, Lise
    Brussoni, Mariana
    Miller, Anton
    O'Donnell, Maureen
    INTERNATIONAL JOURNAL OF QUALITATIVE METHODS, 2010, 9 (04): : 376 - 377
  • [22] French validation of Caregiving Strain Questionnaire of parents with children with autism spectrum disorders
    Fourcade, C.
    Ferrand, C.
    Afzali, M. H.
    Kruck, J.
    Roge, B.
    PSYCHOLOGIE FRANCAISE, 2019, 64 (03): : 277 - 294
  • [23] DIABETES AS A RISK OF PARENTS OF CHILDREN WITH RARE RECESSIVE DISORDERS
    FRASER, GR
    LANCET, 1973, 2 (7826): : 457 - 458
  • [24] DIABETES AS A RISK OF PARENTS OF CHILDREN WITH RARE RECESSIVE DISORDERS
    EDWARDS, JH
    LANCET, 1973, 2 (7820): : 91 - 91
  • [25] Returning incidental findings from genetic research to children: views of parents of children affected by rare diseases
    Kleiderman, Erika
    Knoppers, Bartha Maria
    Fernandez, Conrad V.
    Boycott, Kym M.
    Ouellette, Gail
    Wong-Rieger, Durhane
    Adam, Shelin
    Richer, Julie
    Avard, Denise
    JOURNAL OF MEDICAL ETHICS, 2014, 40 (10) : 691 - 696
  • [26] The parents role in children and youth with motor disorders and their challenges
    Putze, U.
    GESUNDHEITSWESEN, 2008, 70 (07) : 509 - 509
  • [27] Parents' Wishes and Expectations for Children With Chronic Conditions
    Clara Wolman
    Ann Garwick
    Claire Kohrman
    Robert Blum
    Journal of Developmental and Physical Disabilities, 2001, 13 : 261 - 277
  • [28] The Heterogeneity in Financial and Time Burden of Caregiving to Children with Chronic Conditions
    Hua Zan
    Robert L. Scharff
    Maternal and Child Health Journal, 2015, 19 : 615 - 625
  • [29] Cost of Caregiving on Parents of Children With Medical Complexity and Life-Limiting Conditions
    Shriver, Jessica
    PEDIATRICS, 2021, 148 (02)
  • [30] Parents' wishes and expectations for children with chronic conditions
    Wolman, C
    Garwick, A
    Kohrman, C
    Blum, R
    JOURNAL OF DEVELOPMENTAL AND PHYSICAL DISABILITIES, 2001, 13 (03) : 261 - 277
12345