Felt and enacted stigma in elderly persons with epilepsy: A qualitative approach

被引：30

作者：

Sleeth, Carolyn ^{[1
]}

Drake, Kendra ^{[1
]}

Labiner, David M. ^{[1
,2
]}

Chong, Jenny ^{[1
]}

机构：

[1] Univ Arizona, Coll Med, Dept Neurol, Tucson, AZ 85721 USA

[2] Univ Arizona, Coll Pharm, Dept Pharm Practice & Sci, Tucson, AZ 85721 USA

来源：

EPILEPSY & BEHAVIOR | 2016年 / 55卷

关键词：

Elderly; Epilepsy; Stigma; Qualitative; SOCIAL SUPPORT; OLDER-PEOPLE; OF-LIFE; INFORMATION; POPULATION; PREVALENCE; KNOWLEDGE; ILLNESS; ADULTS;

D O I：

10.1016/j.yebeh.2015.12.026

中图分类号：

B84 [心理学]; C [社会科学总论]; Q98 [人类学];

学科分类号：

03 ; 0303 ; 030303 ; 04 ; 0402 ;

摘要：

Stigma is a common psychological consequence of chronic diseases, including epilepsy; however, little research has been done to determine the effect of stigma on persons with epilepsy, especially the elderly. We interviewed 57 older adults with epilepsy to discover the extent and consequences of, and reasons for, epilepsy-related stigma in their lives. Felt stigma was more frequently reported than enacted stigma, with over 70% having experienced this form of stigma. Participants described ignorance and fear of the disease as the foundation of epilepsy-related stigma. The most common response to stigmatizing events was a decrease in epilepsy disclosure to family or friends. Results from this study could inform interventions designed for elderly persons with epilepsy and their support networks, as well as educational campaigns for the general public. (C) 2015 Elsevier Inc. All rights reserved.

引用

页码：108 / 112

页数：5

共 50 条

[31] Stigma and self-efficacy in persons with epilepsy
Smith, Gigi M.
Ferguson, P.
Wagner, J.
Wannamaker, B.
Selassie, A.
EPILEPSIA, 2007, 48 : 238 - 238
[32] Self-efficacy in seizure management differentially correlated with quality of life in persons with epilepsy depending on seizure recurrence and felt stigma
Lee, Sang-Ahm
Kim, Soo Jeong
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 2020, 81 : 91 - 95
[33] Felt stigma in seizure-free persons with epilepsy: Associated factors and its impact on health-related quality of life
Lee, Sang-Ahm
EPILEPSY & BEHAVIOR, 2021, 122
[34] The internalized stigma of persons with epilepsy in the Canadian province of manitoba
Donner, Jacqueline
Ng, Marcus
O'Carroll, Aoife
EPILEPSIA, 2021, 62 : 250 - 251
[35] The relationship between social anxiety and felt stigma in patients with epilepsy: A network analysis
Wei, Zihan
Ren, Lei
Yang, Lei
Liu, Chao
Cao, Mi
Yang, Qun
Liu, Xufeng
Liu, Yonghong
Deng, Yanchun
SEIZURE-EUROPEAN JOURNAL OF EPILEPSY, 2021, 92 : 76 - 81
[36] Evaluating felt stigma among people with epilepsy: Insights from Saudi Arabia
Aljafen, Bandar
Almutairi, Naif
Almousa, Hisham
Alshamrani, Sarah
Alneseyan, Ruwa
JOURNAL OF CLINICAL NEUROSCIENCE, 2025, 135
[37] Epilepsy-associated stigma in Zambia: What factors predict greater felt stigma in a highly stigmatized population?
Atadzhanov, Masharip
Haworth, Alan
Chomba, Elwyn N.
Mbewe, Edward K.
Birbeck, Gretchen Lano
EPILEPSY & BEHAVIOR, 2010, 19 (03) : 414 - 418
[38] Approach to epilepsy stigma: From reducing stigma to enhancing dignity
Tan, Chong-Tin
Lim, Kheng Seang
Lim, Stephanie
Baker, Gus A.
Li, Shi Chuo
NEUROLOGY ASIA, 2023, 28 (02) : 245 - 249
[39] Self-perception of stigma in persons with epilepsy in Tehran, Iran
Ghanean, Helia
Jacobsson, Lars
Nojomy, Marzieh
EPILEPSY & BEHAVIOR, 2013, 28 (02) : 163 - 167
[40] An incognito patient approach to measure enacted HIV and gay stigma in healthcare settings
Zhang, Y.
Sylvia, S.
Meng, S.
Xie, H.
Zhao, R.
Kwan, A.
Luo, D.
Zhang, K.
Fei, I.
Smith, K.
JOURNAL OF THE INTERNATIONAL AIDS SOCIETY, 2023, 26

← 1 2 3 4 5 →