Felt and enacted stigma in elderly persons with epilepsy: A qualitative approach

被引：30
|
作者：
Sleeth, Carolyn [1 ]
Drake, Kendra [1 ]
Labiner, David M. [1 ,2 ]
Chong, Jenny [1 ]
机构：
[1] Univ Arizona, Coll Med, Dept Neurol, Tucson, AZ 85721 USA
[2] Univ Arizona, Coll Pharm, Dept Pharm Practice & Sci, Tucson, AZ 85721 USA
来源：
EPILEPSY & BEHAVIOR | 2016年 / 55卷
关键词：
Elderly; Epilepsy; Stigma; Qualitative; SOCIAL SUPPORT; OLDER-PEOPLE; OF-LIFE; INFORMATION; POPULATION; PREVALENCE; KNOWLEDGE; ILLNESS; ADULTS;
D O I：
10.1016/j.yebeh.2015.12.026
中图分类号：
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号：
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要：
Stigma is a common psychological consequence of chronic diseases, including epilepsy; however, little research has been done to determine the effect of stigma on persons with epilepsy, especially the elderly. We interviewed 57 older adults with epilepsy to discover the extent and consequences of, and reasons for, epilepsy-related stigma in their lives. Felt stigma was more frequently reported than enacted stigma, with over 70% having experienced this form of stigma. Participants described ignorance and fear of the disease as the foundation of epilepsy-related stigma. The most common response to stigmatizing events was a decrease in epilepsy disclosure to family or friends. Results from this study could inform interventions designed for elderly persons with epilepsy and their support networks, as well as educational campaigns for the general public. (C) 2015 Elsevier Inc. All rights reserved.
引用
收藏
页码：108 / 112
页数：5
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