Nurses' Perceptions of Quality of Life for Adolescents with Congenital Heart Disease

被引：4
|
作者：
Shackleford, Jenna L. [1 ]
Minick, Ptlene [1 ]
Kelley, Susan J. [1 ]
机构：
[1] Georgia State Univ, Byrdine F Lewis Sch Nursing & Hlth Profess, POB 4019, Atlanta, GA 30302 USA
来源：
COMPREHENSIVE CHILD AND ADOLESCENT NURSING-BUILDNG EVIDENCE FOR PRACTICE | 2019年 / 42卷 / 02期
关键词：
Adolescents; congenital heart disease; nurses; phenomenology; quality of life; transition; DEPRESSION; CHILDREN; HEALTH; RESILIENCE; ANXIETY;
D O I：
10.1080/24694193.2017.1397066
中图分类号：
R47 [护理学];
学科分类号：
1011 ;
摘要：
The purpose of this study was to understand nurses' perceptions and experiences regarding Quality of Life (QOL) of adolescents with complex congenital heart disease (CHD). Interpretive, hermeneutic, phenomenology was used to explore the perceptions and experiences of nurses who care for adolescents with complex CHD. The participants included 6 female registered nurses with experience taking care of adolescents with complex CHD. Data were collected using semi-structured interviews. Data analysis revealed 4 themes: QOL depends on how the psychological and social issues are interwoven with the physical; finding that balance between over-protection and too much freedom; setting goals to envision a future; and not being defined by a CHD. These results indicate that understanding nurses' perspectives and experiences may contribute to effective guidance for adolescents with complex CHD transitioning into adulthood.
引用
收藏
页码：92 / 108
页数：17
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