Caring for carers: exploring the benefits of group support for carers of people with pulmonary fibrosis

被引：3

作者：

Dean, Antonia ^{[1
]}

Miller, Barbara ^{[1
]}

Hewitt, Claire ^{[1
]}

Cook, Manisha ^{[1
]}

Nicell, Claire ^{[1
]}

Spicer, Karenann ^{[1
]}

机构：

[1] Hosp St Francis, Berkhamsted, England

来源：

PROGRESS IN PALLIATIVE CARE | 2021年 / 29卷 / 01期

关键词：

Idiopathic pulmonary fibrosis; Support group; Psychological support; Lung disease; Hospice; Palliative care; PALLIATIVE CARE; NEEDS;

D O I：

10.1080/09699260.2020.1826777

中图分类号：

R1 [预防医学、卫生学];

学科分类号：

1004 ; 120402 ;

摘要：

Limited evidence suggests carers of people with pulmonary fibrosis (PF) have a variety of information and support needs. This pilot focus group discussion, carried out in 2019, aimed to explore the needs of carers of people with pulmonary fibrosis and evaluate the impact of a UK hospice PF carers' support group. Analysis revealed: (1) loneliness and connection, (2) negotiating with and motivating their loved-ones, and (3) the importance of the best environment for support as key themes. Participants reported a need for both practical and emotional support with the carers' own health sometimes neglected. This evaluation concluded that peer support specifically with other PF carers was hugely valuable to the participants, as was the hospice environment itself. It is recommended that PF-specific carer support is considered when designing services for people with pulmonary fibrosis.

引用

页码：5 / 10

页数：6

共 50 条

[21] ATTITUDES TO CARING AMONG A GROUP OF INFORMAL CARERS OF ELDERLY DEPENDENTS
JONES, DA
SALVAGE, AV
ARCHIVES OF GERONTOLOGY AND GERIATRICS, 1992, 14 (02) : 155 - 165
[22] Living well: exploring experiences of carers of people with motor neurone disease attending an early-access support group
Derbyshire, Julie
Atkinson, Joanne
Dunn, Yvonne
Lowe, Julie-Anne
INTERNATIONAL JOURNAL OF THERAPY AND REHABILITATION, 2023, 30 (07):
[23] Caring for people with early and advanced chronic obstructive pulmonary disease: how do family carers cope?
Figueiredo, Daniela
Gabriel, Raquel
Jacome, Cristina
Marques, Alda
JOURNAL OF CLINICAL NURSING, 2014, 23 (1-2) : 211 - 220
[24] The Support Priorities of Older Carers of People Living with Dementia: A Nominal Group Technique Study
Herron, Daniel
Runacres, Jessica
HEALTHCARE, 2023, 11 (14)
[25] An evaluation of Cognitive Stimulation Therapy sessions for people with dementia and a concomitant support group for their carers
Bailey, Jan
Kingston, Paul
Alford, Simon
Taylor, Louise
Tolhurst, Edward
DEMENTIA-INTERNATIONAL JOURNAL OF SOCIAL RESEARCH AND PRACTICE, 2017, 16 (08): : 985 - 1003
[26] Caring for older people: Carers (vol 313, pg 482, 1996)
Travers, AF
BRITISH MEDICAL JOURNAL, 1996, 313 (7057): : 614 - 614
[27] Implementing a peer-support programme by group videoconferencing for isolated carers of people with dementia
Banbury, Annie
Parkinson, Lynne
Gordon, Steven
Wood, Denise
JOURNAL OF TELEMEDICINE AND TELECARE, 2019, 25 (09) : 572 - 577
[28] Carers and cared for: The structure of the support networks of older people
Ashman, L
Garbett, K
Ranzijn, P
AUSTRALASIAN JOURNAL ON AGEING, 2000, 19 (01): : 40 - 41
[29] A Home Health Monitoring System Designed to Support Carers in Their Caring Role
Taylor, Andrea
Wilson, Richard
Agamanolis, Stefan
INTERNATIONAL CONFERENCE ON EHEALTH, TELEMEDICINE, AND SOCIAL MEDICINE: ETELEMED 2009, PROCEEDINGS, 2009, : 194 - 199
[30] Caring for older people - Carers need financial assistance to buy help
Eskin, F
BRITISH MEDICAL JOURNAL, 1996, 313 (7069): : 1402 - 1403

← 1 2 3 4 5 →