Toward Ethical Research Practice With Deaf Participants

被引:31
|
作者
Singleton, Jenny L. [1 ]
Jones, Gabrielle [2 ]
Hanumantha, Shilpa [3 ]
机构
[1] Georgia Inst Technol, Atlanta, GA 30332 USA
[2] Boston Univ, Boston, MA 02215 USA
[3] Univ Virginia, Charlottesville, VA USA
基金
美国国家科学基金会;
关键词
research ethics; community-engaged research; community-based participatory research; deaf participants; sign language research; deaf researchers; research in host communities; SIGN; EPISTEMOLOGY;
D O I
10.1177/1556264614540589
中图分类号
B82 [伦理学(道德学)];
学科分类号
摘要
In recent years, scholars have been critical of what they consider unethical conduct by researchers whose studies focus on members of the Deaf or signing communities. This is the first empirical study that investigates ethical concerns and recommendations from the perspective of three stakeholder groups (Deaf research participants, researchers, and Deaf studies experts). We analyzed focus group discussions using strategies from grounded theory and community-based participatory research. The themes we identified highlight the need for the broader scientific research community to include linguistically and culturally sensitive research procedures that more adequately protect the rights of Deaf research participants, as well as other marginalized groups. We address the need to increase the number of Deaf scientists and reconsider collaboration practices between Deaf and hearing researchers.
引用
收藏
页码:59 / 66
页数:8
相关论文
共 50 条
  • [21] Toward understanding 'communication' in deaf education research
    O'Neill, Rachel
    Duncan, Jill
    [J]. DEAFNESS & EDUCATION INTERNATIONAL, 2021, 23 (04) : 251 - 252
  • [22] Practice and ethical reflection in research
    Grazia, Valentina
    [J]. PSICOLOGIA CLINICA DELLO SVILUPPO, 2020, 24 (03) : 555 - 556
  • [23] Ethical Reflexivity as Research Practice
    von Unger, Hello
    [J]. HISTORICAL SOCIAL RESEARCH-HISTORISCHE SOZIALFORSCHUNG, 2021, 46 (02): : 186 - 204
  • [24] Is it ethical to deny genetic research participants individualised results?
    Affleck, P.
    [J]. JOURNAL OF MEDICAL ETHICS, 2009, 35 (04) : 209 - 213
  • [25] VULNERABLE PARTICIPANTS IN HEALTH RESEARCH: METHODOLOGICAL AND ETHICAL CHALLENGES
    Nordentoft, Helle Merete
    Kappel, Nanna
    [J]. JOURNAL OF SOCIAL WORK PRACTICE, 2011, 25 (03) : 365 - 376
  • [26] Ethical treatment of the human participants in chemistry education research
    Bauer, Christopher F.
    [J]. ABSTRACTS OF PAPERS OF THE AMERICAN CHEMICAL SOCIETY, 2014, 247
  • [27] Financial incentives for participants in health research: when are they ethical?
    Roa, Tania Manriquez
    Biller-Andorno, Nikola
    [J]. SWISS MEDICAL WEEKLY, 2022, 152
  • [28] Ethical Issues in Neuroimaging Health Research An IPA Study with Research Participants
    Shaw, Rachel L.
    Senior, Carl
    Peel, Elizabeth
    Cooke, Richard
    Donnelly, Louise S.
    [J]. JOURNAL OF HEALTH PSYCHOLOGY, 2008, 13 (08) : 1051 - 1059
  • [29] TOWARD ETHICAL GUIDELINES FOR POLICY RESEARCH
    WARWICK, DP
    PETTIGREW, TF
    [J]. HASTINGS CENTER REPORT, 1983, 13 (01) : S9 - S16
  • [30] Ethics and Research: Searching for Ethical Practice in Research
    Munford, Robyn
    Sanders, Jackie
    Veitch, Brigit Mirfin
    Conder, Jenny
    [J]. ETHICS & SOCIAL WELFARE, 2008, 2 (01): : 50 - 66