Measuring stigma in children with epilepsy and their parents: instrument development and testing

被引:132
|
作者
Austin, JK [1 ]
MacLeod, J
Dunn, DW
Shen, JZ
Perkins, SM
机构
[1] Indiana Univ, Sch Nursing, Indianapolis, IN 46202 USA
[2] Indiana Univ, Sch Med, Indianapolis, IN 46202 USA
关键词
stigma; instrument development; parents; children and adolescents; epilepsy;
D O I
10.1016/j.yebeh.2004.04.008
中图分类号
B84 [心理学]; C [社会科学总论]; Q98 [人类学];
学科分类号
03 ; 0303 ; 030303 ; 04 ; 0402 ;
摘要
Purpose, The goal of this work is to describe psychometric properties of two scales measuring perceived stigma in children with epilepsy and their parents. Methods. Data were collected for the parent scale in two samples: parents of 173 children with epilepsy and of 224 children with new-onset seizures. The child scale was tested in the chronic sample. Content validity, internal consistency reliability, and construct validity were tested. Results. Both scales had strong internal consistency reliability and construct validity. Higher scores were associated with greater seizure severity scores. In the parent scale, lower scores were associated with more positive mood, less worry, and more family leisure activities. In the child scale, higher scores were correlated with more negative attitude, greater worry, poorer self-concept, and more depression symptoms. Conclusions. Both scales were found to have strong psychometric properties. They are short, and items are easy to understand. These scales have potential for use in research and in the clinical setting to measure stigma. (C) 2004 Elsevier Inc. All rights reserved.
引用
收藏
页码:472 / 482
页数:11
相关论文
共 50 条
  • [1] Measuring stigma in children with epilepsy and their parents
    Hardwick, R.
    Brown, S.
    White, C.
    [J]. EPILEPSIA, 2006, 47 : 103 - 104
  • [2] Stress and perceived stigma among parents of children with epilepsy
    Rani, Akanksha
    Thomas, Priya Teresa
    [J]. NEUROLOGICAL SCIENCES, 2019, 40 (07) : 1363 - 1370
  • [3] Affiliate stigma and caregiver burden in parents of children with epilepsy
    Wang, Xingyanan
    Ye, Jinghua
    Tian, Xiaoqin
    Wang, Fangping
    Guo, Xiaocui
    [J]. PREVENTIVE MEDICINE REPORTS, 2024, 41
  • [4] Stress and perceived stigma among parents of children with epilepsy
    Akanksha Rani
    Priya Teresa Thomas
    [J]. Neurological Sciences, 2019, 40 : 1363 - 1370
  • [5] Seizure severity in children with epilepsy is associated with their parents' perception of stigma
    Kanemura, Hideaki
    Sano, Fumikazu
    Ohyama, Tetsuo
    Sugita, Kanji
    Aihara, Masao
    [J]. EPILEPSY & BEHAVIOR, 2016, 63 : 42 - 45
  • [6] STIGMA IN EPILEPSY: DEVELOPMENT AND VALIDATION OF A CULTURALLY RELEVANT INSTRUMENT IN INDIA
    Krishnamoorthy, E. S.
    Anand, A.
    Shankar, S.
    [J]. EPILEPSIA, 2013, 54 : 60 - 61
  • [7] Rural Parents' Perceived Stigma of Seeking Mental Health Services for Their Children: Development and Evaluation of a New Instrument
    Williams, Stacey L.
    Polaha, Jodi
    [J]. PSYCHOLOGICAL ASSESSMENT, 2014, 26 (03) : 763 - 773
  • [8] Family Cohesion, Stigma, and Quality of Life in Dyads of Children With Epilepsy and Their Parents
    Mendes, Teresa P.
    Crespo, Carla A.
    Austin, Joan K.
    [J]. JOURNAL OF PEDIATRIC PSYCHOLOGY, 2017, 42 (06) : 689 - 699
  • [9] Perceptions of stigma of children with epilepsy and their parents and its effects on social life
    Top, Fadime Ustuner
    Cam, Hasan Huseyin
    Bora Günes, Nebahat
    [J]. CURRENT PSYCHOLOGY, 2024, 43 (01) : 62 - 71
  • [10] The association of perceived stigma, religiosity, and paranormal beliefs in parents of children with epilepsy
    Kerkez, Mujde
    Vural, Ozlem
    [J]. EPILEPSY & BEHAVIOR, 2024, 155