Family Cohesion, Stigma, and Quality of Life in Dyads of Children With Epilepsy and Their Parents

被引:30
|
作者
Mendes, Teresa P. [1 ]
Crespo, Carla A. [2 ]
Austin, Joan K. [3 ]
机构
[1] Univ Coimbra, Fac Psicol & Ciencias Educ, Coimbra, Portugal
[2] Univ Lisbon, Fac Psicol, Lisbon, Portugal
[3] Indiana Univ, Sch Nursing, Bloomington, IN 47405 USA
关键词
children and adolescents; epilepsy; family cohesion; parents; quality of life; stigma; HEALTH-RELATED QUALITY; PEDIATRIC PSYCHOLOGY; PERCEIVED STIGMA; VALIDITY; TRAJECTORIES; RELIABILITY; CAREGIVERS; SEVERITY; CONTEXT; SCALE;
D O I
10.1093/jpepsy/jsw105
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
ObjectiveaEuro integral To examine the mediating role of stigma on the links between family cohesion and quality of life (QoL) in children with epilepsy and their parents. MethodsaEuro integral Participants were 192 families attending three Portuguese public hospitals. Children and parents completed self-report measures of family cohesion, stigma, QoL, and health-related QoL (HRQoL). Neurologists assessed clinical variables. Structural equation modeling within the framework of the actor-partner interdependence model was used. ResultsaEuro integral The final model showed a good fit to the data, explaining 43% and 35% of the QoL outcomes of children and parents, respectively. Family cohesion was positively linked to QoL outcomes, directly for children and parents, and indirectly for children only, by way of negative links with perceived stigma. At the dyadic level, parents' perceptions of family cohesion were positively associated with children's HRQoL. ConclusionsaEuro integral A routine screening of those patients experiencing poorer HRQoL should include the assessment of family relationships and stigma.
引用
收藏
页码:689 / 699
页数:11
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