Disability Rights as a Necessary Framework for Crisis Standards of Care and the Future of Health Care

被引：34

作者：

Guidry-Grimes, Laura ^{[1
]}

Savin, Katie ^{[2
]}

Stramondo, Joseph A. ^{[3
,4
]}

Reynolds, Joel Michael ^{[5
,6
]}

Tsaplina, Marina ^{[7
,8
]}

Burke, Teresa Blankmeyer ^{[9
]}

Ballantyne, Angela ^{[10
,11
]}

Kittay, Eva Feder ^{[12
]}

Stahl, Devan ^{[13
]}

Scully, Jackie Leach ^{[14
,15
]}

Garland-Thomson, Rosemarie ^{[16
]}

Tarzian, Anita ^{[17
]}

Dorfman, Doron ^{[18
]}

Fins, Joseph J. ^{[19
,20
]}

机构：

[1] Univ Arkansas Med Sci, Med Humanities & Bioeth, Little Rock, AR 72205 USA

[2] Univ Calif Berkeley, Sch Social Welf, Berkeley, CA 94720 USA

[3] San Diego State Univ, Philosophy, San Diego, CA 92182 USA

[4] San Diego State Univ, Inst Eth & Publ Affairs, San Diego, CA 92182 USA

[5] Georgetown Univ, Philosophy & Disabil Studies, Washington, DC 20057 USA

[6] Kennedy Inst Eth, Washington, DC USA

[7] Duke Univ, Hlth Humanities Lab, Durham, NC 27706 USA

[8] Duke Univ, Trent Ctr Bioeth Humanities & Hist Med, Durham, NC 27706 USA

[9] Gallaudet Univ, Philosophy & Bioeth, Washington, DC 20002 USA

[10] Natl Univ Singapore, Ctr Biomed Eth, Bioeth, Singapore, Singapore

[11] Univ Otago, Dunedin, New Zealand

[12] SUNY Stony Brook, Philosophy, Stony Brook, NY 11794 USA

[13] Baylor Univ, Eth, Waco, TX 76798 USA

[14] Univ New South Wales, Bioeth, Sydney, NSW, Australia

[15] Univ New South Wales, Disabil Innovat Inst, Sydney, NSW, Australia

[16] Emory Univ, English & Bioeth, Atlanta, GA 30322 USA

[17] Maryland Healthcare Eth Comm Network, Baltimore, MD USA

[18] Syracuse Univ, Coll Law, Syracuse, NY 13244 USA

[19] Weill Cornell Med Coll, Med Eth, New York, NY USA

[20] Yale Law Sch, Solomon Ctr Distinguished Scholar Med Bioeth, New Haven, CT USA

来源：

HASTINGS CENTER REPORT | 2020年 / 50卷 / 03期

关键词：

disability; justice; equity; crisis standards of care; pandemic ethics;

D O I：

10.1002/hast.1128

中图分类号：

B82 [伦理学（道德学）];

学科分类号：

摘要：

In this essay, we suggest practical ways to shift the framing of crisis standards of care toward disability justice. We elaborate on the vision statement provided in the 2010 Institute of Medicine (National Academy of Medicine) "Summary of Guidance for Establishing Crisis Standards of Care for Use in Disaster Situations," which emphasizes fairness; equitable processes; community and provider engagement, education, and communication; and the rule of law. We argue that interpreting these elements through disability justice entails a commitment to both distributive and recognitive justice. The disability rights movement's demand "Nothing about us, without us" requires substantive inclusion of disabled people in decision-making related to their interests, including in crisis planning before, during, and after a pandemic like Covid-19.

引用

页码：28 / 32

页数：5

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