Digital Health Tools for Managing Noncommunicable Diseases During and After the COVID-19 Pandemic: Perspectives of Patients and Caregivers

被引:29
|
作者
Monaco, Alessandro [1 ]
Palmer, Katie [2 ]
Faber, Nicolaj Holm Ravn [3 ]
Kohler, Irene [4 ]
Silva, Mitchell [5 ]
Vatland, Anita [6 ]
van Griensven, Joop [7 ]
Votta, Mariano [8 ]
Walsh, Donna [9 ]
Clay, Vincent [10 ]
Yazicioglu, Mehmet Cuneyt [11 ]
Ducinskiene, Danute [12 ]
Donde, Shaantanu [13 ]
机构
[1] Ecole Hautes Etud Commerciales Paris HEC Paris, Rue Liberat 1, F-78350 Jouy En Josas, France
[2] Oliba, Rome, Italy
[3] Danish Comm Hlth Educ, Copenhagen, Denmark
[4] Healthwatch Wiltshire, Trowbridge, England
[5] Esperity, Brussels, Belgium
[6] Parorendealliansen, Oslo, Norway
[7] Pain Alliance Europe, Brussels, Belgium
[8] Cittadinanzatt Act Citizenship Network, Rome, Italy
[9] European Federat Neurol Assoc, Brussels, Belgium
[10] Upjohn, Brussels, Belgium
[11] Upjohn, Istanbul, Turkey
[12] Upjohn, Vilnius, Lithuania
[13] Upjohn, Tadworth, Surrey, England
关键词
digital health; information and communication technologies; health technologies; telemedicine; noncommunicable diseases; COVID-19; SARS-CoV-2; patient advocacy; caregivers; ageing; patient empowerment; digital tool; perspective; patient perspective; CARE; MULTIMORBIDITY;
D O I
10.2196/25652
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: A reduction in the number of face-to-face medical examinations conducted for patients with noncommunicable diseases (NCDs) during the first wave of the COVID-19 pandemic has led to health care professionals quickly adopting different strategies to communicate with and monitor their patients. Such strategies include the increased use of digital health tools. However, patient preferences, privacy concerns, a lack of regulations, overregulation, and insufficient evidence on the efficacy of digital health tools may have hampered the potential positive benefits of using such tools to manage NCDs. Objective: This viewpoint aims to discuss the views of an advisory board of patient and caregiver association members. Specifically, we aim to present this advisory board's view on the role of digital health tools in managing patients with NCDs during and after the COVID-19 pandemic, and to identify future directions based on patients' perspectives. Methods: As an initiative under the NCD Partnership (PARTners in Ncds Engage foR building Strategies to improve Healthy ageing In Patients) model of Upjohn, a web-based advisory board of patient and caregiver advocates was held on July 28, 2020, to bring together key stakeholders from public and private sectors. Results: The following key themes emerged: (1) technology developers should understand that the goals of patients may differ from those of health care professionals and other stakeholders; (2) patients, health care professionals, caregivers, and other end users need to be involved in the development of digital health tools at the earliest phase possible, to guarantee usability, efficacy, and adoption; (3) digital health tools must be better tailored to people with complex conditions, such as multimorbidity, older age, and cognitive or sensory impairment; and (4) some patients do not want or are unable to use digital health care tools, so adequate alternatives should always be available. Conclusions: There was consensus that public-private partnership models, such as the Upjohn NCD Partnership, can be effective models that foster innovation by integrating multiple perspectives (eg, patients' perspectives) into the design, development, and implementation of digital and nondigital health tools, with the main overall objective of improving the life of patients with NCDs.
引用
收藏
页数:9
相关论文
共 50 条
  • [31] Examining the care of noncommunicable diseases at the first level of providing services during the COVID-19 pandemic
    Barzegari, Javad
    Raeissi, Pouran
    Reisi, Nahid
    Hashemi, Masoud
    AryanKhesal, Aidin
    JOURNAL OF PUBLIC HEALTH-HEIDELBERG, 2024, 32 (09): : 1625 - 1630
  • [32] Digital health Adoption of Telemedicine During the COVID-19 Pandemic: Perspectives of Primary Healthcare Providers
    Lintz, Joe
    EUROPEAN JOURNAL OF PUBLIC HEALTH, 2021, 31
  • [33] Geriatric Health Care During the COVID-19 Pandemic: Managing the Health Crisis
    Zhu, Yingqian
    Liu, Yue
    Jiang, Hua
    CLINICAL INTERVENTIONS IN AGING, 2022, 17 : 1365 - 1378
  • [34] Managing Children's Anxiety During COVID-19 Pandemic: Strategies for Providers and Caregivers
    Kang, Ying Qi
    Lim, Tammy S. H.
    Ragen, Elizabeth Sarah
    Tan, Mae Yue
    Aishworiya, Ramkumar
    FRONTIERS IN PSYCHIATRY, 2020, 11
  • [35] Managing dementia care during COVID-19 pandemic: caregivers' experiences in Odisha, India
    Mahapatra, Pranab
    Sahoo, Krushna Chandra
    Desaraju, Shyama
    Nath, Binapani
    Pati, Sanghamitra
    PRIMARY HEALTH CARE RESEARCH AND DEVELOPMENT, 2023, 24
  • [36] Patients'/Caregivers' Perspectives on Telemedicine Service for Advanced Cancer Patients during the COVID-19 Pandemic: An Exploratory Survey
    Atreya, Shrikant
    Kumar, Gaurav
    Samal, Jyotiprakash
    Bhattacharya, Moitri
    Banerjee, Shabnam
    Mallick, Pallab
    Chakraborty, Debratna
    Gupta, Sunipa
    Sarkar, Saswati
    INDIAN JOURNAL OF PALLIATIVE CARE, 2020, 26 (05) : S40 - S44
  • [37] Harnessing Digital Health Technologies During and After the COVID-19 Pandemic: Context Matters
    Petracca, Francesco
    Ciani, Oriana
    Cucciniello, Maria
    Tarricone, Rosanna
    JOURNAL OF MEDICAL INTERNET RESEARCH, 2020, 22 (12)
  • [38] The Ethical Governance of the Digital During and After the COVID-19 Pandemic
    Mariarosaria Taddeo
    Minds and Machines, 2020, 30 : 171 - 176
  • [39] The Ethical Governance of the Digital During and After the COVID-19 Pandemic
    Taddeo, Mariarosaria
    MINDS AND MACHINES, 2020, 30 (02) : 171 - 176
  • [40] Managing Uveitis during the COVID-19 Pandemic
    Smith, Justine R.
    Lai, Timothy Y. Y.
    OPHTHALMOLOGY, 2020, 127 (09) : E65 - E67